Brose, Julie M Willis, Eileen Morgan, Deidre D
Published in
Palliative medicine
People living with advanced cancer experience functional decline and increasing difficulty participating in activities of daily living over their final year of life, consequently reducing quality of life. Palliative rehabilitation may serve to mitigate some of these challenges by optimising function. However, limited research and theory explore the...
Kantabanlang, Yupawadee Lin, Cheng-Pei Nilmanat, Kittikorn Guo, Ping
Published in
Seminars in hematology
Patients with hematologic malignancies often experience fatigue, lack of vitality, and energy, and high psychological distress. High levels of unmet care needs of patients with hematologic malignancies in Asia were identified. This review provides an overview of current evidence on the experiences and palliative care needs of patients with hematolo...
Aasen, Eline Randi Hildursdotter Vatne Søvik, Marte Løvaas Størdal, Ketil Lee, Anja
Published in
Journal of pain and symptom management
According to the UN Convention on the Rights of the Child, children have a right to be heard. This also applies to patients in pediatric palliative care (PPC). The aim of this literature review was to explore what is known about the involvement of children (
Christ, Sebastian M Hünerwadel, Ellen Hut, Bigna Ahmadsei, Maiwand Matthes, Oliver Seiler, Annina Schettle, Markus Blum, David Hertler, Caroline
Published in
BMC palliative care
The place of last care carries importance for patients at the end of life. It is influenced by the realities of the social welfare and healthcare systems, cultural aspects, and symptom burden. This study aims to investigate the place of care trajectories of patients admitted to an acute palliative care unit. The medical records of all patients hosp...
Wang, Xuefei Mo, Yongzhen Yuan, Yingying Zhou, Yi Chen, Yan Sheng, Juan Liu, Jing
Published in
BMC palliative care
The role of palliative care for end-stage renal disease (ESRD) patients have been proven in some developed countries, but it is still unclear in the mainland of China. In fact, patients with ESRD experience many unmet palliative care needs, such as physical, psychological, social and spiritual needs, but the factors influencing these needs have not...
Consolo, Letteria Colombo, Stella Basile, Ilaria Rusconi, Daniele Campa, Tiziana Caraceni, Augusto Lusignani, Maura
Published in
BMC palliative care
Patient-reported outcomes in palliative care enable early monitoring and management of symptoms that most impact patients' daily lives; however, there are several barriers to adopting electronic Patient-reported Outcome Measures (e-PROMs) in daily practice. This study explored the experiences of health care professionals (HCPs) regarding potential ...
Wilkinson, Dominic Jc Bertaud, Sophie
Published in
Seminars in fetal & neonatal medicine
While the underlying principles are the same, there are differences in practice in end of life decisions and care for extremely preterm infants compared with other newborns and older children. In this paper, we review end of life care for extremely preterm infants in the delivery room and in the neonatal intensive care unit. We identify potential j...
Penneau, Anne
Published in
The European journal of health economics : HEPAC : health economics in prevention and care
Patients in residential aged care facilities (RACF) are frequently admitted to hospital since the RACF often lack adequate medical resources. Different economic agents, whose missions and funding may conflict, provide care for RACF residents: residential facility, primary care physicians, and hospital. In this article, I estimate the economic impac...
Bovero, Andrea Cotardo, Francesca Lops, Chiara Botto, Rossana Geminiani, Giuliano Carlo
Published in
Palliative & supportive care
The mutual influence between end-of-life cancer patients and their family caregivers is widely endorsed. The present study aimed to explore the relationship between end-of-life cancer patients' dignity-related distress and the distress of their caregivers. A cross-sectional approach was used. The sample consisted of 128 patients with a Karnofsky Pe...
Wong, Susan P Y Oestreich, Taryn Prince, David K Curtis, J Randall
Published in
American journal of kidney diseases : the official journal of the National Kidney Foundation
Available decision aids for patients about treatment of advanced chronic kidney disease (CKD) often lack information on conservative kidney management (CKM). We assessed the feasibility and acceptability of a decision aid on CKM among patients with advanced CKD and their family members. Randomized pilot trial. Patients aged≥75 years with stage 4 or...
