Rizvi, Faryal Korst, Mark R Young, Meredith Habib, Muhammad Hamza Kra, Joshua A Shah, Ankit Mayer, Tina M Saraiya, Biren Jarrín, Olga F Mattes, Malcolm D
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Published in
Journal of cancer education : the official journal of the American Association for Cancer Education
Palliative radiation therapy (PRT) is underutilized, partially due to misconceptions about its risks, benefits, and indications. The objective of this pilot study was to determine if patients with metastatic cancer would gain knowledge from educational material describing PRT and perceive it as useful in their care. A one-page handout conveying inf...
Li, Xiaomei Wang, Xin Shelley Huang, Haili Liu, Miao Wu, Yinan Qiu, Jiaojiao Zhang, Boran Cui, Linhong Hui, David
Published in
BMC palliative care
This nationwide survey studied the level of palliative care (PC) access for Chinese patients with cancer among cancer care providers either in tertiary general hospitals or cancer hospitals in China. Using a probability-proportionate-to-size method, we identified local tertiary general hospitals with oncology departments to match cancer hospitals a...
Smaling, Hanneke J A Jingyuan, Xu Nakanishi, Miharu Shinan-Altman, Shiri Mehr, David R Radbruch, Lukas Gaertner, Jan Werner, Perla Achterberg, Wilco P van der Steen, Jenny T
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Published in
BMC palliative care
Interventions such as advance care planning (ACP), technology, or access to euthanasia may increase the sense of control over the end of life. In people with advanced dementia, the loss of cognitive and physical function limits the ability to control care. To date, little is known about the acceptability of these interventions from the perspective ...
Zhou, Xiaojun Tian, Xia Fan, Yidan Sun, Mimi Wang, Zheng Huang, Yongqi Xiao, Wenli
Published in
Journal of pain and symptom management
The Functional Assessment of Chronic Illness Therapy-Palliative Care (FACIT-Pal) has been widely used in assessing the quality of life (QOL) of patients with life-limiting illness. However, the Chinese version of the FACIT-Pal has not been psychometrically validated yet. The purpose of this study was to psychometrically validate the FACIT-Pal in Ch...
Nguyen, Viet Khanh, Quach Thanh Hocaoglu, Mevhibe Huyen, Hoang Thi Mong Thinh, Dang Huy Quoc Krakauer, Eric L
Published in
Journal of pain and symptom management
Hospital-based palliative care (PC) linked to palliative home care is rarely accessible in low- and middle-income countries (LMICs). To study people-centered outcomes of a palliative home care team based at a major cancer center in Vietnam. The palliative home care team, consisting of at least one physician and one nurse, provided home PC when need...
Patynowska, Katarzyna A McConnell, Tracey McAtamney, Colette Hasson, Felicity
Published in
Palliative medicine
Healthcare assistants working in hospice at home settings have a pivotal role in supporting people dying at home and their family caregivers. Some healthcare assistants are working alone in patients' homes, which magnifies some of the issues reported for those working closely with other team members. There is a dearth of evidence in terms of educat...
Goni-Fuste, Blanca Pergolizzi, Denise Monforte-Royo, Cristina Julià-Torras, Joaquim Rodríguez-Prat, Andrea Crespo, Iris
Published in
Palliative medicine
The palliative care initial encounter can have a positive impact on the quality of life of patients and family carers if it proves to be a meaningful experience. A better understanding of what makes the encounter meaningful would reinforce the provision of person-centred, quality palliative care. To explore the expectations that patients with cance...
Marshall, Claire Virdun, Claudia Phillips, Jane L.
Background: Forty-five percent of the world’s population lives in rural areas, yet their access to palliative care is quite limited. Identifying the care elements rural populations with palliative care needs require is critical to improving care outcomes. Aim: To identify the key care elements that optimise palliative care for people in rural commu...
Piette, Veerle Deliens, Luc Debulpaep, Sara Cohen, Joachim Beernaert, Kim
Published in
European journal of pediatrics
This study aims to evaluate the appropriateness of end-of-life care for children with genetic and congenital conditions. This is a decedent cohort study. We used 6 linked, Belgian, routinely collected, population-level databases containing children (1-17) who died with genetic and congenital conditions in Belgium between 2010 and 2017. We measured ...
Brose, Julie M Willis, Eileen Morgan, Deidre D
Published in
Palliative medicine
People living with advanced cancer experience functional decline and increasing difficulty participating in activities of daily living over their final year of life, consequently reducing quality of life. Palliative rehabilitation may serve to mitigate some of these challenges by optimising function. However, limited research and theory explore the...
