Tam, Kuai In Che, Sok Leng Zhu, Mingxia Leong, Sok Man
Published in
BMC Palliative Care
BackgroundSince the establishment of a hospice in the year 2000 and the development of a palliative care ward in 2019, there is no study examining public’s knowledge of palliative care, nor preference of end of life care in Macao.AimTargeting Chinese residents of Macao, the current study has 3 goals: i) to understand the level of knowledge of palli...
Namisango, Eve Ramsey, Lauren Dandadzi, Adlight Okunade, Kehinde Ebenso, Bassey Allsop, Matthew J.
Published in
BMC Medical Informatics and Decision Making
BackgroundDespite regional efforts to address concerns regarding the burden of advanced cancer in Africa, urgent attention is still required. Widespread issues include late symptom presentation, inaccessibility of palliative care services, limited resources, poor data quality, disparity in data availability, and lack of stakeholder engagement. One ...
Brant, Jeannine M. Al-Zadjali, Manal Al-Sinawi, Faiqa Mushani, Tayreez Maloney-Newton, Susan Berger, Ann M. Fink, Regina
Published in
Journal of Cancer Education
Nurses are on the frontline of palliative care, and in some countries, are the only contact for patients and families facing life-threatening illness. The Oman Cancer Association in the Sultanate of Oman, in collaboration with the Middle Eastern Cancer Consortium and the Oncology Nursing Society, led a palliative care initiative over the past decad...
Ozdemir, Semra Ng, Sean Malhotra, Chetna Teo, Irene Finkelstein, Eric A Singh, Ratna Dent, Rebecca A Yeo, Wee Lee Cheung, Yin Bun Malhotra, Rahul
...
Published in
Innovation in Aging
Background and Objectives Many patient–caregiver dyads report conflicting treatment decisions regarding preferences for life extension treatments and symptom management. It is possible that this discordance will lead to negative psychological outcomes including lowered caregiving esteem and increased caregiver burden. However, the relationships bet...
Kuwata, Caitlyn Goldhirsch, Suzanne L. Rodríguez, Vanessa
Published in
Current Oncology Reports
Purpose of ReviewThe risks of developing cancer and dementia both increase with age, giving rise to the complex question of whether continued cancer screening for older dementia patients is appropriate. This paper offers a practice-based clinical approach to determine an answer to this challenging question.Recent FindingsThere is no consensus on th...
Morgan, Tessa
Background Population ageing has rapidly increased the number of people requiring end-of-life care across the globe. Governments have responded by promoting end-of-life in the community. Partly as a consequence, older partners are frequently providing for their partner’s end-of-life care at home, despite potentially facing their own health issues. ...
Miranda, Rose; Smets, Tinne; De Schreye, Robrecht; Faes, Kristof; 133698; Van Den Noortgate, Nele; Cohen, Joachim; Van den Block, Lieve;
BACKGROUND: While palliative home care is advocated for people with dementia, evidence of its effectiveness is lacking. AIM: To evaluate the effects of palliative home care on quality and costs of end-of-life care for older people with dementia. DESIGN: Decedent cohort study using linked nationwide administrative databases and propensity score matc...
Engel, Marijanne Stoppelenburg, Arianne van der Ark, Andrée Bols, Floor M. Bruggeman, Johannis Janssens-van Vliet, Ellen C.J. Kleingeld-van der Windt, Johanna H. Pladdet, Ingrid E. To-Baert, Angelique E.M.J. van Zuylen, Lia
...
Published in
BMC Palliative Care
BackgroundIn the Netherlands, healthcare professionals attending patients in the last phase of life, can consult an expert palliative care team (PCT) in case of complex problems. There are two types of PCTs: regional PCTs, which are mainly consulted by general practitioners, and hospital PCTs, which are mainly consulted by healthcare professionals ...
Vlckova, Karolina Polakova, Kristyna Tuckova, Anna Houska, Adam Loucka, Martin
Published in
BMC Palliative Care
BackgroundPatients with advanced disease may not be invited to participate in research based on the assumption that participation would be too burdensome for them. The aim of this study was to explore how patients with advanced disease and their relatives evaluate their experience with research participation.MethodThis study used data from two part...
Van Gorp, Baldwin Olthuis, Gert Vandekeybus, Anneleen van Gurp, Jelle
Published in
BMC Palliative Care
BackgroundBased on the case of palliative care and euthanasia in the Netherlands, this paper presents an analysis of frames and counter-frames used in the ongoing public debate about these two intertwined topics. Each (counter)frame presents a cultural theme that can act as a prism to give meaning to palliative care and/or euthanasia. Each frame co...
