Withholding treatment in infancy.

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Withholding treatment in infancy.

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PMC
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  • Medicine
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Abstract

Progeria suggestions Physical Therapy and Occupational Therapy in Progeria Information for Families and Caretakers from The Progeria Research Foundation Written By Leslie Gordon, MD, PhD Lisa MacDonnell R.P.T. Version date February 9, 2004, LBG Copyright © 2004 by The Progeria Research Foundation, Inc. All rights reserved. Page 1 of 5 Please address all Correspondence to: The Progeria Research Foundation P.O. Box 3453 Peabody, MA 01961-3453 TEL: 978/535-2594 FAX: 978/535-5849 Email: [email protected] www.progeriaresearch.org Version date February 9, 2004, LBG Copyright © 2004 by The Progeria Research Foundation, Inc. All rights reserved. Page 2 of 5 Physical and Occupational Therapy in Progeria Hutchinson-Gilford Progeria Syndrome (“Progeria”, or “HGPS”) is a rare, fatal genetic condition characterized by an appearance of accelerated aging in children. Children with Progeria need Physical Therapy (PT) and Occupational Therapy (OT) as often as possible (optimally 2- 3 times each per week) to ensure maximum range of motion and optimal daily functioning throughout their lives. Services can be provided in a traditional medical setting or a school setting depending on eligibility criteria in individual states. The role of the PT/OT in the school setting is to maintain range of motion, strength, and functional status so a student can access the school building and playground and participate with peers in classroom activities, at recess, and in Physical Education class. Proactive PT and OT are important, since all children with Progeria develop restrictions in range of motion in a progressive manner. Boney abnormalites are almost always evident in X-rays by the age of 2 years. Range of motion may be restricted for several reasons. Children with HGPS experience progressive joint contractures, primarily in the knees, ankles, and fingers due to tendonous abnormali

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