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Why Studying Rare Diseases Is So Important: Do You Know of This Disease?

Authors
  • Lupoli, Federica1
  • Pastore, Annalisa2
  • 1 Department of Biotechnology, Chemistry and Pharmacy, University of Siena, Siena , (Italy)
  • 2 Maurice Wohl Institute, King’s College London, London
Type
Published Article
Journal
Frontiers for Young Minds
Publisher
Frontiers Media SA
Publication Date
Mar 09, 2017
Volume
5
Identifiers
DOI: 10.3389/frym.2017.00003
Source
Frontiers
Disciplines
  • Neuroscience
  • Core Concept
License
Green

Abstract

Some diseases affect many people and are of course very bad. Some other diseases affect just a few people and are called rare diseases. This sounds like a good thing but… if you are one of the few people affected by a rare disease, this is not a good thing! It is actually very bad because, often, pharmaceutical companies are not interested in developing a treatment for you because too few people would buy the drugs. In this article, Federica will tell you about her experience with a rare disease and explain what causes it and what can be done, if anything, to cure this very nasty disease. We hope that you can help us to find a cure.

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