Validity of a condition specific outcome measure for fragile X syndrome: the Aberrant Behaviour Checklist-utility index.
RTI International, Research Triangle Park, Durham, NC, USA.
Novartis Pharmaceuticals, East Hanover, NJ, USA.
RTI Health Solutions, Research Triangle Park, Durham, NC, USA.
Novartis AG, Basel, Switzerland.
- Published Article
Journal of intellectual disability research : JIDR
- Publication Date
Sep 01, 2016
The ABC-UI appears to function well as condition-specific outcome measure, and as an indicator of health-related quality-of-life and economic burden in individuals with FXS. Among patients with FXS in the US and their caregivers, significant differences in health care resource utilisation and burden exist across health state utility categories.
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This record was last updated on 06/09/2018 and may not reflect the most current and accurate biomedical/scientific data available from NLM.
The corresponding record at NLM can be accessed at https://www.ncbi.nlm.nih.gov/pubmed/26929037