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Validity of a condition specific outcome measure for fragile X syndrome: the Aberrant Behaviour Checklist-utility index.

Authors
  • Raspa, M1
  • Sacco, P2
  • Candrilli, S D3
  • Bishop, E1
  • Petrillo, J4
  • 1 RTI International, Research Triangle Park, Durham, NC, USA.
  • 2 Novartis Pharmaceuticals, East Hanover, NJ, USA.
  • 3 RTI Health Solutions, Research Triangle Park, Durham, NC, USA.
  • 4 Novartis AG, Basel, Switzerland. , (Switzerland)
Type
Published Article
Journal
Journal of intellectual disability research : JIDR
Publication Date
Sep 01, 2016
Volume
60
Issue
9
Pages
844–855
Identifiers
DOI: 10.1111/jir.12264
PMID: 26929037
Source
Medline
Keywords
License
Unknown

Abstract

The ABC-UI appears to function well as condition-specific outcome measure, and as an indicator of health-related quality-of-life and economic burden in individuals with FXS. Among patients with FXS in the US and their caregivers, significant differences in health care resource utilisation and burden exist across health state utility categories.

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