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Validation of the Health-Related Independence for Young Adults with Autism Spectrum Disorder Measure- Caregiver Version.

Authors
  • Cheak-Zamora, Nancy1
  • Petroski, Greg2
  • La Manna, Anna3
  • Beversdorf, David4
  • Farmer, Janet5
  • 1 Department of Health Professions, School of Health Professions, University of Missouri, 510 Clark Hall, Columbia, MO, 65211, USA. [email protected]
  • 2 Department of Health Management and Informatics, School of Medicine, University of Missouri, Columbia, USA.
  • 3 Department of Social Work, University of Missouri, Columbia, USA.
  • 4 Department of Radiology, Neurology and Psychology, School of Medicine, University of Missouri, Columbia, USA.
  • 5 School of Health Professions, University of Missouri, Columbia, USA.
Type
Published Article
Journal
Journal of Autism and Developmental Disorders
Publisher
Springer-Verlag
Publication Date
Jun 01, 2021
Volume
51
Issue
6
Pages
2036–2046
Identifiers
DOI: 10.1007/s10803-020-04690-2
PMID: 32892234
Source
Medline
Keywords
Language
English
License
Unknown

Abstract

Little is known about Young adults with Autism Spectrum Disorder (YA-ASD) health, healthcare and safety needs. This study describes the validation of a health care transition measure for YA-ASD, the Health-Related Independence (HRI). We collected data from caregivers (n = 490) at five Autism Treatment Network sites and compared the psychometric properties of HRI to the gold standard (STARx) and other validated measures. A Confirmatory Factor Analysis and item culling resulted in 30 items addressing six subscales. Content, criterion, and construct validity and internal consistency indicated high validity and reliability for the scale and subscales. HRI is a validated caregiver-report measure of YA-ASD's self-management, safety, and transition skills. This novel measure will be a useful tool in clinics, intervention development, and research.

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