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Validation of the French versions of the Hirschsprung's disease and Anorectal malformations Quality of Life (HAQL) questionnaires for adolescents and adults

Authors
  • Baayen, Corine
  • Feuillet, Fanny
  • Clermidi, Pauline
  • Crétolle, Célia
  • Sabine Sarnacki
  • Podevin, Guillaume
  • Hardouin, Jean-Benoit
Type
Published Article
Journal
Health and Quality of Life Outcomes
Publisher
Springer (Biomed Central Ltd.)
Publication Date
Jul 22, 2017
Volume
15
Issue
1
Identifiers
DOI: 10.1186/s12955-017-0599-7
PMID: 28129770
PMCID: PMC5273813
Source
USPC - SET - SVS
Keywords
License
Green

Abstract

Background: The Hirschsprung's disease Anorectal malformation QoL questionnaire (HAQL) is a disease-specific quality of life (QoL) questionnaire for patients with Hirschsprung's disease (HD) or anorectal malformations (ARM). It was originally proposed in Dutch and is currently being translated into other languages to obtain an internationally standardized instrument. In this work we validate a French adaptation of the HAQL for adolescents and adults. Methods: The questionnaires were translated into French and sent to patients aged 12 years and older, followed for HD or ARM at three French university hospitals. Questionnaires were sent to 147 adolescents and 188 adults. The psychometric properties of the questionnaires were analyzed in terms of reliability and validity. Results: The original HAQL structure was not satisfactory. A new structure was proposed, while aiming to remain close to the original structure. The proposed structure has acceptable reliability and validity properties and reflects both physical, as well as psychosocial aspects. Conclusions: A French version of the HAQL questionnaire for adults and adolescents is ready for use in France. In particular the score could discriminate between degrees of clinical status based on the Krickenbeck consensus, which can aid clinicians to inform patients about physical and psychosocial challenges they may expect.

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