Affordable Access

deepdyve-link
Publisher Website

Taking on a pandemic's challenge: Emergent solutions from a single Hemophlia treatment center in North India.

Authors
  • Radhakrishnan, Nita1
  • Shankar, Ravi2
  • Singh, Savitri2
  • Rana, Megha2
  • 1 Department of Pediatric Hematology Oncology, Super Speciality Pediatric Hospital and Post Graduate Teaching Institute, Noida, Delhi NCR, India. Electronic address: [email protected] , (India)
  • 2 Department of Pediatric Hematology Oncology, Super Speciality Pediatric Hospital and Post Graduate Teaching Institute, Noida, Delhi NCR, India. , (India)
Type
Published Article
Journal
Transfusion and Apheresis Science
Publisher
Elsevier
Publication Date
Apr 01, 2021
Volume
60
Issue
2
Pages
103022–103022
Identifiers
DOI: 10.1016/j.transci.2020.103022
PMID: 33248907
Source
Medline
Keywords
Language
English
License
Unknown

Abstract

The global pandemic caused by SARS-COV-2 infection has raised several unique concerns in the bleeding disorders community. Although the risk of COVID-19 infection is not increased in patients with inherited bleeding disorders, the indirect effects of this infection are many. A cross sectional survey was conducted among patients registered to our centre with inherited bleeding disorders. A web-based based questionnaire was developed and shared with patients and families. 120 patients/ families answered the questionnaire completely. During the period of lockdown, many had bleeds that were left untreated due to either difficulty in travel or unavailability of treatment. The time to treatment ranged from 8 h to 15 days in those who had a bleed. 36 % faced financial difficulties and 40 % families reported losing their job or source of income during this period. Few solutions that emerged while treating patients during this period and recommendations are discussed. Even though haemophilia has been included under the essential health services and states mandated to continue treatment for these patients despite the global crisis, patients still face challenges in terms of transport and finance. Copyright © 2020. Published by Elsevier Ltd.

Report this publication

Statistics

Seen <100 times