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Six countries, six individuals: resourceful patients navigating medical records in Australia, Canada, Chile, Japan, Sweden and the USA

Authors
  • Salmi, Liz1
  • Brudnicki, Selina2
  • Isono, Maho3
  • Riggare, Sara4
  • Rodriquez, Cecilia5
  • Schaper, Louise K6
  • Walker, Jan1, 7
  • Delbanco, Tom1, 7
  • 1 Beth Israel Deaconess Medical Center, Boston, Massachusetts, USA , Boston
  • 2 University Health Network, Toronto, Ontario, Canada , Toronto (Canada)
  • 3 International University of Health and Welfare, Ōtawara, Japan , Ōtawara (Japan)
  • 4 Health Informatics Centre, Karolinska Institutet, Stockholm, Sweden , Stockholm (Sweden)
  • 5 Fundacion Me Muevo, Santiago, Chile , Santiago (Chile)
  • 6 Health Informatics Society of Australia, Victoria, South Australia, Australia , Victoria (Australia)
  • 7 Harvard Medical School, Boston, Massachusetts, USA , Boston
Type
Published Article
Journal
BMJ Open
Publisher
BMJ
Publication Date
Sep 15, 2020
Volume
10
Issue
9
Identifiers
DOI: 10.1136/bmjopen-2020-037016
PMID: 32933961
PMCID: PMC7493106
Source
PubMed Central
Keywords
License
Green

Abstract

In the absence of international standards, widely differing attitudes and laws, medical and social cultures strongly influence whether and how patients may access their medical records in various settings of care. Reviewing records, including the notes clinicians write, can help shape how people participate in their own care. Aided at times by new technologies, individual patients and care partners are repurposing existing tools and designing innovative, often ‘low-tech’ ways to collect, sort and interpret their own health information. To illustrate diverse approaches that individuals may take, six individuals from six nations offer anecdotes demonstrating how they are learning to collect, assess and benefit from their personal health information.

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