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Rethinking palliative care in a public health context: addressing the needs of persons with non-communicable chronic diseases

Authors
  • Tziraki, Chariklia1, 2
  • Grimes, Corrina3
  • Ventura, Filipa4
  • O’Caoimh, Rónán5
  • Santana, Silvina6
  • Zavagli, Veronica7
  • Varani, Silvia8
  • Tramontano, Donatella9
  • Apóstolo, João10
  • Geurden, Bart11
  • De Luca, Vincenzo12
  • Tramontano, Giovanni13
  • Romano, Maria Rosaria13
  • Anastasaki, Marilena14
  • Lionis, Christos14
  • Rodríguez-Acuña, Rafael15
  • Capelas, Manuel Luis16
  • dos Santos Afonso, Tânia17
  • Molloy, David William18
  • Liotta, Giuseppe19
  • And 5 more
  • 1 Hebrew University of Jerusalem, Israel , (Israel)
  • 2 Community Clubs for Elders, Israel , (Israel)
  • 3 Public Health Agency of Northern Ireland, UK
  • 4 The Health Sciences Research Unit: Nursing, Nursing School of Coimbra, Portugal , (Portugal)
  • 5 National University of Ireland, Ireland , (Ireland)
  • 6 Institute of Electronics and Informatics Engineering of Aveiro, University of Aveiro, Portugal , (Portugal)
  • 7 , ANT Italia Foundation, Italy , (Italy)
  • 8 ANT Italia Foundation, Italy , (Italy)
  • 9 Federico II University of Naples, Italy , (Italy)
  • 10 Nursing School of Coimbra, Portugal , (Portugal)
  • 11 University of Antwerp, Belgium , (Belgium)
  • 12 Federico II University Hospital, Italy , (Italy)
  • 13 General Directorate for Health, Italy , (Italy)
  • 14 University of Crete, Greece , (Greece)
  • 15 Andalusian Public Foundation Progress and Health (FPS), Spain , (Spain)
  • 16 Institute of Health Sciences, Portuguese Catholic University, Portugal , (Portugal)
  • 17 University of Coimbra, Portugal , (Portugal)
  • 18 University College of Cork, Ireland , (Ireland)
  • 19 University of Rome Tor Vergata, Italy , (Italy)
  • 20 Umeå University, Sweden , (Sweden)
  • 21 Medical University of Graz, Austria , (Austria)
Type
Published Article
Journal
Primary Health Care Research & Development
Publisher
Cambridge University Press
Publication Date
Sep 15, 2020
Volume
21
Identifiers
DOI: 10.1017/S1463423620000328
PMID: 32928334
PMCID: PMC7503185
Source
PubMed Central
Keywords
License
Green

Abstract

Non-communicable chronic diseases (NCCDs) are the main cause of morbidity and mortality globally. Demographic aging has resulted in older populations with more complex healthcare needs. This necessitates a multilevel rethinking of healthcare policies, health education and community support systems with digitalization of technologies playing a central role. The European Innovation Partnership on Active and Healthy Aging (A3) working group focuses on well-being for older adults, with an emphasis on quality of life and healthy aging. A subgroup of A3, including multidisciplinary stakeholders in health care across Europe, focuses on the palliative care (PC) model as a paradigm to be modified to meet the needs of older persons with NCCDs. This development paper delineates the key parameters we identified as critical in creating a public health model of PC directed to the needs of persons with NCCDs. This paradigm shift should affect horizontal components of public health models. Furthermore, our model includes vertical components often neglected, such as nutrition, resilience, well-being and leisure activities. The main enablers identified are information and communication technologies, education and training programs, communities of compassion, twinning activities, promoting research and increasing awareness amongst policymakers. We also identified key ‘bottlenecks’: inequity of access, insufficient research, inadequate development of advance care planning and a lack of co-creation of relevant technologies and shared decision-making. Rethinking PC within a public health context must focus on developing policies, training and technologies to enhance person-centered quality life for those with NCCD, while ensuring that they and those important to them experience death with dignity.

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