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Results of the interprofessional and interdisciplinary Berlin round table on patient-reported outcomes, quality of life, and treatment expectations of patients with gynecological cancer under maintenance treatment.

Authors
  • Armbrust, Robert1
  • Alavi, Sara1
  • Pirmorady, Adak1
  • Chen, Frank1
  • Colombo, Nicoletta2
  • Gultekin, Murat3
  • Hierro, Charo4
  • Lemley, Birthe5
  • Mirza, Mansoor Raza6
  • Urkmez, Esra7, 8
  • Fotopoulou, Christina9
  • Vinzent, Jutta10
  • Gonzalez Martin, Antonio11
  • Krull, Andrea12
  • Heepe, Judith13
  • Rose, Mathias14
  • Sehouli, Jalid15
  • 1 Department of Gynecology, Charité University Hospital Berlin, Berlin, Germany. , (Germany)
  • 2 Medical Gynecologic Oncology Unit, University of Milan Bicocca; European Institute of Oncology, Milan, Italy. , (Italy)
  • 3 Cancer Control Department, Turkish Ministry of Health, Ankara, Turkey. , (Turkey)
  • 4 Asociación de Afectados por Cáncer de Ovario, Barcelona, Spain. , (Spain)
  • 5 KIU - patientforeningen Kræft, Copenhagen, Denmark. , (Denmark)
  • 6 Department of Oncology, Rigshospitalet; Copenhagen University Hospital, Copenhagen, Denmark. , (Denmark)
  • 7 European Society of Gynaecological Oncology-European Network of Gynecological Cancer Advocacy Groups (ESGO-ENGAGe) Chair, Geneva, Switzerland. , (Switzerland)
  • 8 Kanserle Dans, Ankara, Turkey. , (Turkey)
  • 9 Gynaecologic Oncology, Imperial College London Faculty of Medicine, London, UK.
  • 10 German Ovarian Cancer Foundation, Berlin, Germany. , (Germany)
  • 11 Medical Oncology, Clinica Universidad de Navarra, Madrid, Spain. , (Spain)
  • 12 Eierstockkrebs Deutschland e.V, Neumünster, Germany. , (Germany)
  • 13 Department of Nursery, Charité University Hospital Berlin, Berlin, Germany. , (Germany)
  • 14 Department of Psychosomatic Medicine, Charité University Hospital Berlin, Berlin, Germany. , (Germany)
  • 15 Department of Gynecology, Charité University Hospital Berlin, Berlin, Germany [email protected]. , (Germany)
Type
Published Article
Journal
International Journal of Gynecological Cancer
Publisher
Ovid Technologies (Wolters Kluwer) - Lippincott Williams & Wilkins
Publication Date
Oct 01, 2020
Volume
30
Issue
10
Pages
1603–1607
Identifiers
DOI: 10.1136/ijgc-2019-001070
PMID: 32817309
Source
Medline
Keywords
Language
English
License
Unknown

Abstract

Patients' reported outcomes and their perspectives around their therapeutic management is a field of continuously increasing relevance in gynecological oncology. We report the results of the Berlin dialog on seven patient-reported parameters and outcomes concerning chemotherapy and maintenance treatment in patients with gynecological cancer. Key opinion leaders in gynecological oncology from different European counties and representatives of leading patients' advocate groups in Berlin held a consensus meeting in Berlin on April 6, 2019. Seven topics of interest were identified in advance around quality of life, iatrogenic toxicity, treatment decision-making processes, sexuality, participation in clinical trials, second opinion, and long-term survivors with the the following standard operating procedure for processing and discussion: (1) agreement on its relevance; (2) literature review, and (3) discussion and consensus statements. All main topics reached a consensus approval. The defined statements emphasized the importance of patients' role in incorporating and establishing quality of life as an outcome parameter in clinical trials. Furthermore, discussants raised the importance of identifying new tools for reflecting patient-reported iatrogenic toxicity as well as emphasizing patients' rights in providing personal information, access to second opinion in the decision-making process, and their participation in clinical trials. The results of this round table meeting could help redefine perspectives on the discussed topics and the importance for therapeutic management as well as for trial designs. © IGCS and ESGO 2020. No commercial re-use. See rights and permissions. Published by BMJ.

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