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Research priorities set by people with OCD and OCD researchers: Do the commonalities outweigh the differences?

Authors
  • Kühne, Franziska1
  • Brütt, Anna Levke2
  • Otterbeck, Mara Jasmin1
  • Weck, Florian1
  • 1 Department of Psychology, Clinical Psychology and Psychotherapy, University of Potsdam, Potsdam, Germany. , (Germany)
  • 2 Department for Health Services Research, Carl von Ossietzky University Oldenburg, Oldenburg, Germany. , (Germany)
Type
Published Article
Journal
Health expectations : an international journal of public participation in health care and health policy
Publication Date
May 01, 2021
Volume
24 Suppl 1
Pages
40–46
Identifiers
DOI: 10.1111/hex.13005
PMID: 31782245
Source
Medline
Keywords
Language
English
License
Unknown

Abstract

In contrast to research agendas being predominantly set by scientists or funders, a collaborative approach was used to spot future goals for research on obsessive-compulsive disorder. First, we conducted a meta-review and then compared the results of two online surveys with OCD professionals and patients on research priorities. The literature search was performed in three comprehensive databases, and ten research goals were extracted. Sixty-four patients and eight professionals responded to open questions on their five most important goals. Then, they ranked the ten aims extracted from the literature on a 6-point Likert scale. For patients and professionals, research on treatment gains that persist long-term was most important. Concerning the top five goals listed in an open format, for patients, development and maintenance of the disease was as important as psychotherapy and its efficacy. In contrast, for professionals, the efficacy and the optimization of psychotherapy were the far most important research goals. We proposed one possibility to involve patients in OCD research, and the multitude of answers presents a wealth of research ideas. Since consistent research involvement may contribute to its clinical impact, researchers are now invited to translate our findings into empirical studies. © 2019 The Authors. Health Expectations published by John Wiley & Sons Ltd.

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