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Problems experienced by informal caregivers with older care recipients with and without cognitive impairment.

Authors
  • Van Bruggen, Sytske1
  • Gussekloo, Jacobijn1
  • Bode, Christina2
  • Touwen, Dorothea P3
  • Engberts, Dick P3
  • Blom, Jeanet W1
  • 1 a Department of Public Health and Primary Care , Leiden University Medical Center , Leiden , The Netherlands. , (Netherlands)
  • 2 b Department of Psychology, Health, and Technology , University of Twente , Enschede , The Netherlands. , (Netherlands)
  • 3 c Department of Health Ethics and Health Law , Leiden University Medical Center , Leiden , The Netherlands. , (Netherlands)
Type
Published Article
Journal
Home health care services quarterly
Publication Date
Jan 01, 2016
Volume
35
Issue
1
Pages
11–24
Identifiers
DOI: 10.1080/01621424.2016.1145166
PMID: 27018745
Source
Medline
Keywords
License
Unknown

Abstract

The care of older persons can have negative impact on the caregiver. The objective of this population-based observational study is to identify problems experienced by informal caregivers, and the extent of related difficulties, in their care of older care-dependent recipients with and without cognitive impairment. Caregivers (n = 2,704) caring for a home-dwelling person aged ≥ 75 years responded to a questionnaire with 23 questions on problems and related difficulties by mail. Prevalence of self-reported problems and related difficulties was calculated. The impact of the problem was estimated by weighing the percentage of problems reported as being difficult against the prevalence of problems. The median number of problems was 12 (range 0-23), with 5 (range 0-23) reported as difficult. Informal caregivers experience a variety of problems, with the impossibility to engage in joint social activities having the highest impact. The impact of problems increased when the care recipient had a cognitive problem.

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