Affordable Access

deepdyve-link
Publisher Website

Perceptions of risk and adherence to care in MS patients during the COVID-19 pandemic: A cross-sectional study

Authors
  • Zhang, Yinan1
  • Staker, Erin1
  • Cutter, Gary2
  • Krieger, Stephen1
  • Miller, Aaron E1
  • 1 Department of Neurology, Icahn School of Medicine at Mount Sinai, New York, NY, USA
  • 2 Department of Biostatistics, University of Alabama at Birmingham, Birmingham, AL, USA
Type
Published Article
Journal
Multiple Sclerosis and Related Disorders
Publisher
Elsevier B.V.
Publication Date
Feb 23, 2021
Volume
50
Pages
102856–102856
Identifiers
DOI: 10.1016/j.msard.2021.102856
PMID: 33662858
PMCID: PMC7899915
Source
PubMed Central
Keywords
Disciplines
  • Original Article
License
Unknown

Abstract

Background The COVID-19 pandemic has raised concerns for increased risk of infection in patients with multiple sclerosis (MS) and disrupted their routine MS care. The aim of this study is to characterize the extent of MS patients’ perceptions of risk and adherence to care during the pandemic. Methods A survey was emailed to patients from a large MS center in New York City during the local peak of the pandemic to assess perceptions of infection risk and adherence to MS care including appointments, laboratory studies, MRIs, and taking disease-modifying therapies (DMT). Results 529 patients from the MS center responded to the survey during two weeks in April 2020. Patients collectively showed concern about becoming infected with COVID-19 (88%) and perceived a higher infection risk due of having MS (70%) and taking DMTs (68%). Patients frequently postponed appointments (41%), laboratory studies (46%), and MRIs (41%). Noncompliance with DMTs was less common (13%). Decisions to alter usual recommendations for care were made by the patient more often than by the provider regarding adherence to appointments (68%), laboratory studies (70%), MRI (67%), and DMT (65%). Degree of concern for infection was associated with adherence to appointments (p=0.020) and laboratory studies (p=0.016) but not with adherence to MRI and DMTs. Thirty-five patients reported being tested for COVID-19, of whom fourteen reported a positive test. Conclusion Patients with MS were highly concerned about becoming infected during the local peak of the COVID-19 pandemic. Behaviors that deviated from originally recommended MS care were common and often self-initiated, but patients were overall compliant with continuing DMTs.

Report this publication

Statistics

Seen <100 times