Affordable Access

deepdyve-link
Publisher Website

Perceptions of Gastrostomy Buttons Among Caregivers of Children With Special Health Care Needs.

Authors
  • Edwards, Latoya
  • Leafman, Joan S
Type
Published Article
Journal
Journal of pediatric health care : official publication of National Association of Pediatric Nurse Associates & Practitioners
Publication Date
Jan 01, 2019
Volume
33
Issue
3
Pages
270–279
Identifiers
DOI: 10.1016/j.pedhc.2018.09.005
PMID: 30497892
Source
Medline
Keywords
Language
English
License
Unknown

Abstract

Children with special health care needs (CSHCN) have chronic conditions that generally are classified as developmental disabilities. Children with developmental disabilities are at high risk of malnutrition. Gastrostomy buttons are frequently used to provide enteral nutrition for children with developmental disabilities. This study aimed to understand caregivers' perceptions regarding gastrostomy button placement for CSHCN. Caregivers (N = 257) were recruited from CSHCN peer support groups to complete an online survey regarding perceptions of gastrostomy button placement. Kolmogorov-Smirnov testing found that results were not normally distributed. Nonparametric testing with Spearman rank correlation was used to determine the relationship between Overall Satisfaction With Choice and all other perception variables. The findings suggested overall satisfaction and willingness to accept gastrostomy button placement earlier. Gastrostomy button placement has diverse effects for children with developmental disabilities and their families. Health care professionals must be knowledgeable about the positive and negative outcomes to effectively educate families as they consider gastrostomy placement. Copyright © 2018 National Association of Pediatric Nurse Practitioners. Published by Elsevier Inc. All rights reserved.

Report this publication

Statistics

Seen <100 times