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Patients' Perspectives on What Makes a Better Care Experience While Undergoing Treatment for Oropharyngeal Dysphagia Secondary to Head and Neck Cancer.

Authors
  • Checklin, Martin1
  • Bain, Jessica2
  • Bath, Lucy2
  • Lethbridge, Kate2
  • 1 Speech Pathology and Dietetics, Epworth Rehabilitation and Mental Health, Epworth Healthcare, 32 Erin Street, Richmond, VIC, 3121, Australia. [email protected] , (Australia)
  • 2 Speech Pathology and Dietetics, Epworth Rehabilitation and Mental Health, Epworth Healthcare, 32 Erin Street, Richmond, VIC, 3121, Australia. , (Australia)
Type
Published Article
Journal
Dysphagia
Publication Date
Nov 20, 2019
Identifiers
DOI: 10.1007/s00455-019-10077-y
PMID: 31748827
Source
Medline
Keywords
Language
English
License
Unknown

Abstract

Patients' perceptions on what makes a better care experience for head and neck cancer (HNca) have not been widely sought. Patients' perceptions can play a crucial role in shaping quality care and client involvement. To investigate patients' perspectives on what makes a better care experience while undergoing rehabilitation for oropharyngeal dysphagia secondary to HNca. Qualitative data were collected in the form of semi-structured interviews from eight patients after they had undergone rehabilitation for HNca. The data were thematically analysed by two researchers independently. Six themes, plus subthemes, were identified. These themes were Supportive network is essential; Reassurance from staff professionalism; Access to service; Using own motivation and resilience; Receiving the right information and Ongoing shock and adjustment. Results are discussed in context of the literature and clinical implications and future research are recommended. Collation of patients' perspectives is valuable to increase insight into what makes a better rehabilitative journey for patients with HNca. Rehabilitation that is holistic, specialised and patient-specific is highly valued by patients with HNca.

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