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Patient online access to general practice medical records: A qualitative study on patients' needs and expectations.

Authors
  • Thielmann, Rosa Rlc1
  • Hoving, Ciska1
  • Schutgens-Kok, Esther1
  • Cals, Jochen Wl2
  • Crutzen, Rik1
  • 1 Department of Health Promotion, Care and Public Health Research Institute, Maastricht University, Maastricht, The Netherlands. , (Netherlands)
  • 2 Department of Family Medicine, Care and Public Health Research Institute, Maastricht University, Maastricht, The Netherlands. , (Netherlands)
Type
Published Article
Journal
Health information management : journal of the Health Information Management Association of Australia
Publication Date
Sep 01, 2024
Volume
53
Issue
3
Pages
166–173
Identifiers
DOI: 10.1177/18333583221144666
PMID: 36655702
Source
Medline
Keywords
Language
English
License
Unknown

Abstract

Patient online access to medical records is assumed to foster patient empowerment and advance patient-centred healthcare. Since July 2020, patients in the Netherlands have been legally entitled to electronically access their medical record in general practice. Experience from pioneering countries has shown that despite high patient interest, user rates often remain low. How to best support implementation depends on individual needs and expectations of patient populations, which are as yet unknown in the Dutch context. To understand Dutch patients' needs and expectations with regard to online access to their medical record in general practice. Twenty participants completed semi-structured individual interviews via video or telephone call. Transcripts of interviews underwent template analysis combining deductive and inductive coding using Atlas.ti software. Patients' needs and expectations ranged across three overlapping areas: (i) prerequisites for getting online access; (ii) using online access; and (iii) the impact on interaction with healthcare providers. Patients expected benefits from online access such as better overview, empowerment and improved communication with their general practitioner but identified needs regarding technological difficulties, data privacy and complex medical language in their record. The concerns and obstacles participants identified point towards the need for organisational changes in general practice, for example, adjusted documentation practices, and the key role of the general practitioner and staff in promoting and facilitating online access. Implementation strategies addressing needs identified in this study may help to unlock the full potential of online access to achieve desired outcomes of patient involvement and satisfaction.

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