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The partner's perspective of the impact of pituitary disease: Looking beyond the patient.

Authors
  • Andela, Cornelie D1
  • Tiemensma, Jitske2
  • Kaptein, Adrian A1
  • Scharloo, Margreet1
  • Pereira, Alberto M1
  • Kamminga, Noëlle Ga3
  • Biermasz, Nienke R1
  • 1 Leiden University Medical Center, The Netherlands. , (Netherlands)
  • 2 University of California, USA.
  • 3 Maastricht University Medical Center, The Netherlands. , (Netherlands)
Type
Published Article
Journal
Journal of health psychology
Publication Date
Oct 01, 2019
Volume
24
Issue
12
Pages
1687–1697
Identifiers
DOI: 10.1177/1359105317695427
PMID: 28810427
Source
Medline
Keywords
Language
English
License
Unknown

Abstract

People with pituitary disease report impairments in quality of life. The aim of this study was to elucidate the impact of the pituitary condition on the lives of partners. Four focus groups of partners of people with pituitary disease (Cushing's disease, non-functioning adenoma, acromegaly, prolactinoma) were conducted. Partners mentioned worries related to the pituitary disease and negative beliefs about medication, coping challenges, relationship issues, social issues and unmet needs regarding care. This study emphasizes the importance of not only paying attention to psychosocial well-being of people with pituitary disease but also to their partners.

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