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Pandemics, privacy, and public health research

Authors
  • Bernier, Alexander1
  • Knoppers, Bartha Maria1
  • 1 McGill University, 740, Avenue Dr. Penfield, Suite 5200, Montreal, Quebec, H3A 0G1, Canada , Montreal (Canada)
Type
Published Article
Journal
Canadian Journal of Public Health
Publisher
Springer International Publishing
Publication Date
Jun 26, 2020
Volume
111
Issue
4
Pages
454–457
Identifiers
DOI: 10.17269/s41997-020-00368-5
Source
Springer Nature
Keywords
License
Green

Abstract

Sharing data expediently for pandemic response purposes exposes healthcare providers in Canada to significant regulatory uncertainty. Duplicative and contradictory ethical and legal duties flowing from overlapping sources can stifle flows of medical data among clinicians, researchers, and institutions. Authorities should support caregivers and accelerate research by providing clear guidance to the health sector. Institutions should foster robust data stewardship and standardize their practices to those recognized among the international health informatics community. Reform is critical to ensuring Canadian healthcare providers can deliver efficient health responses that are integrated with dispersed and disparate national and international approaches.

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