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An open letter to the hemophilia community from the Community Advocacy Working Group.

Authors
  • Dubin, C
  • Hamilton, J
  • Kuhn, D
  • Niederman, R
  • Ray, C
  • Ray, L
  • Valdez, D
  • Wadleigh, J
Type
Published Article
Journal
Common factor (Stoughton, Mass.)
Publication Date
Apr 01, 1995
Issue
no 10
Pages
24–26
Identifiers
PMID: 11362348
Source
Medline
License
Unknown

Abstract

The Community Advocacy Working Group (CAWG) writes an open letter to the hemophiliac community, outlining the legislative efforts on behalf of the community since 1988, the current legislative campaign of the National Hemophilia Foundation (NHF), and the creation of CAWG. CAWG was created to resolve differences between the NHF platform and the Community of Ten Thousand (COTT) platform to avoid contradictory efforts in Congress. The NHF has betrayed CAWG, and this betrayal has damaged their legislative efforts. CAWG suggests that the NHF has a hidden agenda: they want to give members of the community an incentive to oppose the class action lawsuit and any other AIDS litigation, a position held since 1985 when they began to help the fractionators in court. CAWG states that the clear loser of these cross-purpose platforms and hidden agendas would be families with hemophilia who are enduring HIV disease. CAWG requests that only materials produced or endorsed by CAWG be used by community members in their congressional visits.

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