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Online Education and e-Consent for GeneScreen, a Preventive Genomic Screening Study.

Authors
  • Cadigan, R Jean1
  • Butterfield, Rita
  • Rini, Christine
  • Waltz, Margaret
  • Kuczynski, Kristine J
  • Muessig, Kristin
  • Goddard, Katrina A B
  • Henderson, Gail E
  • 1 Department of Social Medicine, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.
Type
Published Article
Journal
Public health genomics
Publication Date
Jan 01, 2017
Volume
20
Issue
4
Pages
235–246
Identifiers
DOI: 10.1159/000481359
PMID: 29069655
Source
Medline
Keywords
Language
English
License
Unknown

Abstract

Online study recruitment is increasingly popular, but we know little about the decision making that goes into joining studies in this manner. In GeneScreen, a genomic screening study that utilized online education and consent, we investigated participants' perceived ease when deciding to join and their understanding of key study features. Individuals were recruited via mailings that directed them to a website where they could learn more about GeneScreen, consent to participate, and complete a survey. Participants found it easy to decide to join GeneScreen and had a good understanding of study features. Multiple regression analyses revealed that ease of deciding to join was related to confidence in one's genetic self-efficacy, limited concerns about genetic screening, trust in and lack of frustration using the website, and the ability to spend a limited time on the website. Understanding of study features was related to using the Internet more frequently and attaining more information about GeneScreen conditions. The ease of deciding to join a genomic screening study and comprehension of its key features should be treated as different phenomena in research and practice. There is a need for a more nuanced understanding of how individuals respond to web-based consent information. © 2017 S. Karger AG, Basel.

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