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Needs of Grandparents of Preschool-Aged Children with ASD in Sweden.

Authors
  • Zakirova Engstrand, Rano1
  • Roll-Pettersson, Lise2
  • Westling Allodi, Mara2
  • Hirvikoski, Tatja3, 4
  • 1 Department of Special Education, Stockholm University, 106 91, Stockholm, Sweden. [email protected] , (Sweden)
  • 2 Department of Special Education, Stockholm University, 106 91, Stockholm, Sweden. , (Sweden)
  • 3 Department of Women's and Children's Health, Pediatric Neuropsychiatry Unit, Center for Neurodevelopmental Disorders at Karolinska Institutet (KIND), Karolinska Institutet, Stockholm, Sweden. , (Sweden)
  • 4 Habilitation & Health, Stockholm County Council, Stockholm, Sweden. , (Sweden)
Type
Published Article
Journal
Journal of Autism and Developmental Disorders
Publisher
Springer-Verlag
Publication Date
Jun 01, 2020
Volume
50
Issue
6
Pages
1941–1957
Identifiers
DOI: 10.1007/s10803-019-03946-w
PMID: 30825081
Source
Medline
Keywords
Language
English
License
Unknown

Abstract

Little is known about needs of grandparents of young children with autism in family and community settings. This study investigated perceived needs of grandparents of preschool-aged children diagnosed with ASD in the cultural context of Sweden. Participants were 120 grandparents of children enrolled into autism intervention programs provided by the public disability services in Stockholm. The Grandparents' Needs Survey and the SDQ Impact supplement were used to collect data. Grandparents expressed most needs in topic areas of information and childcare. No significant relations were found between grandparents' demographics and perceptions of needs; grandparents' needs were predicted by their perceived burden. The findings provide insight into understanding of grandparents' needs essential for planning and provision of quality family-centered early intervention services.

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