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Moving Forward from the COVID-19 Pandemic: Needed Changes in Movement Disorders Care and Research

Authors
  • Valdovinos, B. Y.
  • Modica, J. S.
  • Schneider, R. B.
Type
Published Article
Journal
Current Neurology and Neuroscience Reports
Publisher
Springer-Verlag
Publication Date
Feb 02, 2022
Volume
22
Issue
2
Pages
113–122
Identifiers
DOI: 10.1007/s11910-022-01178-7
PMID: 35107786
PMCID: PMC8809223
Source
PubMed Central
Keywords
Disciplines
  • Movement Disorders (T. Simuni, Section Editor)
License
Unknown

Abstract

Purpose of Review The COVID-19 pandemic has dramatically affected the health and well-being of individuals with movement disorders. This manuscript reviews these effects, discusses pandemic-related changes in clinical care and research, and suggests improvements to care and research models. Recent Findings During the on-going COVID-19 pandemic, individuals with movement disorders have experienced worsening of symptoms, likely due to decreased access to care, loss of social connection, and decreased physical activity. Through telemedicine, care has moved out of the clinic and into the home. Clinical research has also been significantly disrupted, and there has been a shift to decentralized approaches. The pandemic has highlighted disparities in access to care and representation in research. Summary We must now translate these experiences into better care and research models with a focus on equitable integration of telemedicine, better support of patients and caregivers, the development of meaningful digital endpoints, and optimization of decentralized research designs.

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