Affordable Access

deepdyve-link
Publisher Website

Minors' and Young Adults' Experiences of the Research Consent Process in a Phase II Safety Study of Pre-exposure Prophylaxis for HIV.

Authors
  • Knopf, Amelia S1
  • Ott, Mary A2
  • Liu, Nancy3
  • Kapogiannis, Bill G4
  • Zimet, Gregory D2
  • Fortenberry, J Dennis2
  • Hosek, Sybil G5
  • 1 Department of Community & Health Systems, Indiana University School of Nursing, Indianapolis, Indiana. Electronic address: [email protected] , (India)
  • 2 Department of Pediatrics, Adolescent Medicine, Indiana University School of Medicine, Indianapolis, Indiana. , (India)
  • 3 Westat, Rockville, Maryland.
  • 4 Department of Health and Human Services, Eunice Kennedy Shriver National Institute of Child Health and Human Development, National Institutes of Health, Bethesda, Maryland.
  • 5 Department of Psychiatry, Stroger Hospital of Cook County, Chicago, Illinois.
Type
Published Article
Journal
The Journal of adolescent health : official publication of the Society for Adolescent Medicine
Publication Date
Dec 01, 2017
Volume
61
Issue
6
Pages
747–754
Identifiers
DOI: 10.1016/j.jadohealth.2017.06.013
PMID: 28967541
Source
Medline
Keywords
License
Unknown

Abstract

Participants had an overwhelmingly positive experience in a Phase II safety study of PrEP for HIV prevention. Some minors wished for more support during the decision-making process, but none consulted their parents about the decision. Our results support the inclusion of decisional supports in consent processes for adolescents, while also protecting their privacy.

Report this publication

Statistics

Seen <100 times