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The "Managing Fatigue" programme for people with multiple sclerosis - acceptance and feasibility with Swedish occupational therapists.

Authors
  • Månsson Lexell, Eva1, 2
  • Haglund, Lena3
  • Packer, Tanya4, 5
  • 1 Department of Health Sciences, Lund University, Lund, Sweden. , (Sweden)
  • 2 Department of Neurology and Rehabilitation Medicine, Skåne University Hospital, Lund-Malmö, Sweden. , (Sweden)
  • 3 Department of Social and Welfare Studies, Linköping University, Linköping, Sweden. , (Sweden)
  • 4 Schools of Occupational Therapy and Health Administration, Dalhousie University, Nova Scotia, Canada. , (Canada)
  • 5 Radboud University Medical Center, Nijmegen, The Netherlands. , (Netherlands)
Type
Published Article
Journal
Scandinavian journal of occupational therapy
Publication Date
Oct 01, 2020
Volume
27
Issue
7
Pages
536–549
Identifiers
DOI: 10.1080/11038128.2019.1634149
PMID: 31282796
Source
Medline
Keywords
Language
English
License
Unknown

Abstract

Background: Fatigue is common among people with multiple sclerosis (MS), and significantly influences engagement in occupations. The Managing Fatigue (MF) programme is an evidence-based occupational therapy group-based intervention, utilising self-management science that provides people with tools to manage fatigue. Although the national MS-guidelines in Sweden cite this as best practice, a Swedish version is not available.Aim: To translate and investigate the feasibility of a Swedish MF programme delivered by occupational therapists working with MS clients in Sweden.Material and methods: We used a mixed-methods design. Eight recruited occupational therapists, participated in a workshop prior to delivering the MF programme. Following programme delivery, they completed a questionnaire and participated in focus group interviews.Results: Each therapist conducted one programme with 5-9 MS clients. Overall, therapists were satisfied with programme content, and delivery was followed. Minor improvements were suggested, specifically in relation to how cognitive fatigue can be managed. Therapists acknowledged challenges moving from "expert" to supporting self-management.Conclusion: The MF programme is feasible in Sweden, and its client-centred and occupation focus is consistent with therapists' scope of practice. In the future, acceptability and satisfaction from the perspectives of MS participants should be examined. Larger, more robust intervention studies evaluating effectiveness are also warranted.

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