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Implementing and evaluating the first german young-carers project: intentions, pitfalls and the need for piloting complex interventions.

Authors
  • Schlarmann, Jörg Große1
  • Metzing-Blau, Sabine
  • Schnepp, Wilfried
  • 1 Department of Nursing Science, Witten/Herdecke University, Stockumer Straße 12, D-58453 Witten, Germany. [email protected]
Type
Published Article
Journal
The open nursing journal
Publication Date
2011
Volume
5
Pages
38–44
Identifiers
DOI: 10.2174/1874434601105010038
PMID: 21660183
Source
Medline
Keywords
License
Unknown

Abstract

The aim of the study was to develop, implement and evaluate a concept for the first support program for young carers and their families in Germany. This paper intends to critically review the implementation of that study and describe the problems experienced by the research team, including: the complexity of the intervention itself, the difficulty of finding host organizations, the lack of infrastructure, different values and beliefs about the project aims held between the host organization and the research team, shortage of time, identifying and recruiting families among the hidden population of young carers. These initial problems led to the re-constructuring of the original research design. In order to evaluate factors that influenced these difficulties, the original research intentions, emerging problems and their consequences will be presented.

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