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Impact of familial adenomatous polyposis on young adults: attitudes toward genetic testing, support, and information needs.

Authors
  • Andrews, Lesley1
  • Mireskandari, Shab
  • Jessen, Jaime
  • Thewes, Belinda
  • Solomon, Michael
  • Macrae, Finlay
  • Meiser, Bettina
  • 1 Hereditary Cancer Clinic, Prince of Wales Hospital, Sydney, Australia.
Type
Published Article
Journal
Genetics in medicine : official journal of the American College of Medical Genetics
Publication Date
November 2006
Volume
8
Issue
11
Pages
697–703
Identifiers
PMID: 17108761
Source
Medline
License
Unknown

Abstract

The parental desire to test children before it is clinically indicated may be a source of distress and create conflict with genetic services. These findings demonstrate that familial adenomatous polyposis may significantly impact young adults, with many having unmet support needs. The length of time since the last genetic consultation and the young age at which these consultations took place suggest that clinics should consider a means of regular follow-up to address these unmet needs.

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