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Illness experience and coping styles of young and middle-aged patients with sudden sensorineural hearing loss: a qualitative study

Authors
  • Yuan, Yang1, 2
  • Wang, Hong2, 3
  • Chen, Qiuyun2
  • Xie, Congyan2
  • Li, Haixia3
  • Lin, Lu1, 2
  • Tian, Li1, 2
  • 1 The First Affiliated Hospital of Soochow University/School of Nursing, Medical College of Soochow University, No. 188 Shizi Road, Suzhou, 215006, People’s Republic of China , Suzhou (China)
  • 2 Medical College of Soochow University, Suzhou, 215006, China , Suzhou (China)
  • 3 Shanghai Jiao Tong University School of Medicine, Suzhou, 215021, China , Suzhou (China)
Type
Published Article
Journal
BMC Health Services Research
Publisher
Springer (Biomed Central Ltd.)
Publication Date
Jul 27, 2021
Volume
21
Issue
1
Identifiers
DOI: 10.1186/s12913-021-06763-z
Source
Springer Nature
Keywords
Disciplines
  • Research
License
Green

Abstract

BackgroundThe incidence of Sudden Sensorineural Hearing Loss (SSNHL) is increasing and tends to occur at a young age. The patient’s disease experience during treatment is related to their physical and mental health. Effective coping styles such as proactively solving problems and asking for help will alleviate the patients’ psychological symptoms and improve their quality of life.Aims and objectivesTo explore the illness experience and coping styles of young and middle-aged patients with SSNHL (age: 18–64 years), clarify the relationship between the two, and understand the psychological state and needs of the patients.MethodsThe purposive and maximum difference sampling method was used to conduct semi-structured interviews with 23 young and middle-aged SSNHL patients. The interview data were analyzed by Colaizzi’s seven-step analysis.ResultsThe illness experience of young and middle-aged SSNHL patients was complex, including symptoms during the onset of deafness and emotional experience before and after diagnosis. The coping styles of young and middle-aged SSNHL patients were active and diverse, including active acquisition of information, change in living habits, and seeking the care and attention of medical staff. Illness experience and coping style influence each other: good illness experience leads to active coping styles; active coping style results in good illness experience.ConclusionsThe illness experience of young and middle-aged SSNHL patients includes not only physical symptoms, but also changes in psychological and emotional reactions. Good illness experience can lead patients to adopt active coping style. Active and effective coping styles, such as positive acquisition of information, change in living habits and seeking care and help, can improve patients’ illness experience.

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