How do people living with chronic conditions and their informal caregivers experience primary care? A phenomenological-hermeneutical study.
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Authors
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Boeykens, Dagje1, 2
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Sirimsi, Muhammed Mustafa3, 4
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Timmermans, Lotte5
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Hartmann, Maja Lopez6
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Anthierens, Sibyl7
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De Loof, Hans8
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De Vliegher, Kristel9
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Foulon, Veerle10
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Huybrechts, Ine7, 11
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Lahousse, Lies12
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Pype, Peter2
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Schoenmakers, Birgitte5
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Van Bogaert, Peter3
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Van den Broeck, Kris4
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Van Hecke, Ann2, 13
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Verhaeghe, Nick2, 14
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Vermandere, Mieke5
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Verté, Emily4, 11
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Van de Velde, Dominique1, 15
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De Vriendt, Patricia1, 15, 16
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1
Department of Rehabilitation Sciences, Occupational Therapy, Faculty of Medicine and Health Sciences, Ghent University, Ghent, Belgium.
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(Belgium)
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2
Department of Public Health and Primary Care, Faculty of Medicine and Health Sciences, Ghent University, Ghent, Belgium.
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(Belgium)
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3
Faculty of Medicine and Health Sciences, Centre for Research and Innovation in Care, University of Antwerp, Antwerp, Belgium.
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(Belgium)
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4
Department of Primary Care and Interdisciplinary Care, Faculty of Medicine and Health Sciences, University of Antwerp, Antwerp, Belgium.
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(Belgium)
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5
Department of Public Health and Primary Care, Faculty of Medicine, Academic Centre for General Practice, KU Leuven, Leuven, Belgium.
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(Belgium)
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6
Department of Welfare and Health, Karel de Grote University of Applied Sciences and Arts, Antwerp, Belgium.
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(Belgium)
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7
Department of Family Medicine and Population Health, University of Antwerp, Antwerp, Belgium.
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(Belgium)
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8
Laboratory of Physiopharmacology, Faculty of Pharmaceutical, Biomedical and Veterinary Sciences, University of Antwerp, Antwerp, Belgium.
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(Belgium)
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9
Nursing Department, Wit-Geel Kruis Vlaanderen, Brussels, Belgium.
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(Belgium)
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10
Department of Pharmaceutical and Pharmacological Sciences, Faculty of Pharmaceutical Sciences, KU Leuven, Leuven, Belgium.
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(Belgium)
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11
Department of Family Medicine and Chronic Care, Faculty of Medicine and Pharmacy, Vrije Universiteit Brussel, Brussels, Belgium.
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(Belgium)
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12
Department of Bioanalysis, Faculty of Pharmaceutical Sciences, Ghent University, Ghent, Belgium.
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(Belgium)
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13
Faculty of Medicine and Health Sciences, University Centre of Nursing and Midwifery, Ghent University, Ghent, Belgium.
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(Belgium)
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14
Research group Social and Economic Policy and Social Inclusion, Research Institute for Work and Society, KU Leuven - HIVA, Leuven, Belgium.
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(Belgium)
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15
Department of Occupational Therapy, Artevelde University of Applied Sciences, Ghent, Belgium.
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(Belgium)
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16
Frailty in Ageing (FRIA) Research Group, Department of Gerontology and Mental Health and Wellbeing (MENT) research group, Faculty of Medicine and Pharmacy, Vrije Universiteit, Brussels, Belgium.
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(Belgium)
- Type
- Published Article
- Journal
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Journal of Clinical Nursing
- Publisher
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Wiley (Blackwell Publishing)
- Publication Date
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Feb 01, 2023
- Volume
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32
- Issue
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3-4
- Pages
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422–437
- Identifiers
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DOI: 10.1111/jocn.16243
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PMID: 35178849
- Source
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Medline
- Keywords
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- Language
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English
- License
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Unknown
Abstract
Gaining insight in how people living with chronic conditions experience primary healthcare within their informal network. The primary healthcare system is challenged by the increasing number of people living with chronic conditions. To strengthen chronic care management, literature and policy plans point to a person-centred approach of care (PCC). A first step to identify an appropriate strategy to implement PCC is to gain more insight into the care experiences of these people and their informal caregivers. A phenomenological-hermeneutical philosophy is used. The study is in line with the Consolidated Criteria for Reporting Qualitative Research Guidelines (COREQ). In-depth, semi-structured interviews with people living with chronic conditions and informal caregiver dyads (PCDs) (n = 16; 32 individuals) were conducted. An open-ended interview guide was used to elaborate on the PCDs' experiences regarding primary care. A purposive, maximal variation sampling was applied to recruit the participants. Based on sixteen PCDs' reflections, ten themes were identified presenting their experiences with primary care and described quality care as listening and giving attention to what people with chronic conditions want, to what they strive for, and above all to promote their autonomy in a context wherein they are supported by a team of formal caregivers, family and friends. To meet the PCDs' needs, self-management should be addressed in an interprofessional environment in which the PCD is an important partner. The findings may facilitate a shift to encourage PCDs in their strengths by enabling them to share their personal goals and by working towards meaningful activities in team collaboration. Three strategies-self-management support, goal-oriented care, and interprofessional collaboration-have been suggested to improve the PCDs' primary care experiences. These strategies could guide nursing practice in using more and improve high-quality nursing care. © 2022 John Wiley & Sons Ltd.
From MEDLINE®/PubMed®, a database of the U.S. National Library of Medicine.
This record was last updated on 01/18/2023 and may not reflect the most current and accurate biomedical/scientific data available from NLM.
The corresponding record at NLM can be accessed at
https://www.ncbi.nlm.nih.gov/pubmed/35178849
