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Health care transitions for persons living with dementia and their caregivers

Authors
  • Ashbourne, Jessica1
  • Boscart, Veronique1, 2
  • Meyer, Samantha1
  • Tong, Catherine E.1
  • Stolee, Paul1
  • 1 University of Waterloo, 200 University Avenue West, Waterloo, ON, N2L 3G1, Canada , Waterloo (Canada)
  • 2 Conestoga College Institute of Technology and Advanced Learning, Kitchener, Ontario, N2G 4M4, Canada , Kitchener (Canada)
Type
Published Article
Journal
BMC Geriatrics
Publisher
BioMed Central
Publication Date
Apr 29, 2021
Volume
21
Issue
1
Identifiers
DOI: 10.1186/s12877-021-02235-5
Source
Springer Nature
Keywords
License
Green

Abstract

BackgroundPersons with dementia are likely to require care from various health care providers in multiple care settings, necessitating navigation through an often-fragmented care system. This study aimed to create a better understanding of care transition experiences from the perspectives of persons living with dementia and their caregivers in Ontario, Canada, through the development of a theoretical framework.MethodsConstructivist grounded theory guided the study. Seventeen individual caregiver interviews, and 12 dyad interviews including persons with dementia and their caregivers, were recorded and transcribed verbatim. The data were coded using NVivo 10 software; analysis occurred iteratively until saturation was reached.ResultsA theoretical framework outlining the context, processes, and influencing factors of care transitions was developed and refined. Gaining an in-depth understanding of the complex care transitions of individuals with dementia and their caregivers is an important step in improving the quality of care and life for this population.ConclusionThe framework developed in this study provides a focal point for efforts to improve the health care transitions of persons living with dementia.

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