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Gatekeepers of science: attitudes toward the research participation of adults with intellectual disability.

Authors
  • McDonald, Katherine E
  • Keys, Christopher B
  • Henry, David B
Type
Published Article
Journal
American journal of mental retardation : AJMR
Publication Date
Nov 01, 2008
Volume
113
Issue
6
Pages
466–478
Identifiers
DOI: 10.1352/2008.113:466-478
PMID: 19127657
Source
Medline
License
Unknown

Abstract

Researchers and Institutional Review Board (IRB) members' attitudes influence scientific knowledge about individuals with intellectual disability. We recruited 260 intellectual disability researchers and IRB members to develop a measure of attitudes toward the research participation of adults with intellectual disability, the Participation in Research Attitude Scale. Findings suggest three conceptual domains: Opportunity and Choice, Help in Decision Making, and Beneficence. We also examined individual differences in attitudes and the relationships between general and specific attitudes. In general, intellectual disability researchers and those with closer relationships to individuals with disabilities had attitudes consistent with disability-rights principles. Some dimensions of global attitudes toward adults with intellectual disability predictedmore specific attitudes toward their research participation. Implications are discussed.

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