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Feeling controlled or being in control? Apps for self-management among older people with neurological disability.

  • Winberg, C1
  • Kylberg, M1
  • Pettersson, C1, 2
  • Harnett, T3
  • Hedvall, P-O4
  • Mattsson, T5
  • Månsson Lexell, E1, 6
  • 1 Department of Health Sciences, Lund University, Lund, Sweden. , (Sweden)
  • 2 Department of School of Health Sciences, Örebro University, Örebro, Sweden. , (Sweden)
  • 3 School of Social Work, Lund University, Lund, Sweden. , (Sweden)
  • 4 Department of Design Sciences, Lund University, Lund, Sweden. , (Sweden)
  • 5 Department of Law, Lund University, Lund, Sweden. , (Sweden)
  • 6 Department of Neurology and Rehabilitation Medicine, Skåne University Hospital, Lund-Malmö, Sweden. , (Sweden)
Published Article
Disability and rehabilitation. Assistive technology
Publication Date
Aug 01, 2021
DOI: 10.1080/17483107.2019.1685017
PMID: 31711351


The aim of this paper was to describe how people living with a neurological disability such as multiple sclerosis, Parkinson's disease and stroke reason regarding using apps to facilitate self-management in everyday life. A qualitative research approach with a focus group methodology was used. The sample comprised 16 participants, 11 men and 5 women, with an average age of 64 years (ranging from 51-80 years). Six participants were diagnosed with multiple sclerosis, six with Parkinson's disease and four with stroke. Data were analyzed using thematic analysis, which is a method for identifying, analyzing and reporting patterns. The results formed two themes. The first theme "using apps to have control of my health" comprises two subthemes; "monitor and take responsibility for a healthy lifestyle" and "compensate to facilitate everyday life". The second theme "using the app as a tool and means for communication" also comprised two subthemes; "dare to trust the app" and "feeling safe when sharing information with health care professionals". The use of apps put increased responsibility on the person and had the possibility to make them more involved in their own care. The use of an app can facilitate a healthy lifestyle and help to monitor disease-specific symptoms. In order to be able to use apps for communication with the health care sector legislation and safety issues need to be considered.Implications for rehabilitationApps can be used for self-management if they are safe and can be trusted.People with neurological disabilities want to be involved in their healthcare and needs to be addressed by health care professionals.The use of apps grasp over a wide variety of areas this is something that may be considered in health care and something that can be addressed by interdisciplinary approaches.Ordinary health-oriented apps and disease-specific apps were used differently and for different purposes.

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