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Examining the Efficacy of a Family Peer Advocate Model for Black and Hispanic Caregivers of Children with Autism Spectrum Disorder

Authors
  • Jamison, J. M.1
  • Fourie, E.1
  • Siper, P. M.1, 2
  • Trelles, M. P.1, 2
  • George-Jones, Julia1
  • Buxbaum Grice, A.1
  • Krata, J.3
  • Holl, E.4
  • Shaoul, J.5
  • Hernandez, B.6
  • Mitchell, L.6
  • McKay, M. M.7
  • Buxbaum, J. D.1, 2, 8, 9, 10, 11
  • Kolevzon, Alexander1, 2, 10, 12, 11
  • 1 Icahn School of Medicine at Mount Sinai, Seaver Autism Center for Research and Treatment, One Gustave L. Levy Place, New York, NY, 10029, USA , New York (United States)
  • 2 Icahn School of Medicine at Mount Sinai, Department of Psychiatry, New York, NY, USA , New York (United States)
  • 3 Private Practice, New York, NY, USA , New York (United States)
  • 4 Saint Paul College, 235 Marshall Avenue, St. Paul, MN, 55102, USA , St. Paul (United States)
  • 5 NYC Human Resources Administration, 150 Greenwich St., New York, NY, 10007, USA , New York (United States)
  • 6 Young Adult Institute (YAI) Autism Center, 460 W. 34th St., New York, NY, 10001, USA , New York (United States)
  • 7 New York University Silver School of Social Work, McSilver Institute for Poverty Policy and Research, 1 Washington Square North, G03, New York, NY, 10003, USA , New York (United States)
  • 8 Icahn School of Medicine at Mount Sinai, Department of Genetics and Genomic Sciences, New York, NY, USA , New York (United States)
  • 9 Icahn School of Medicine at Mount Sinai, Department of Neuroscience, New York, NY, USA , New York (United States)
  • 10 Icahn School of Medicine at Mount Sinai, Friedman Brain Institute, New York, NY, USA , New York (United States)
  • 11 Icahn School of Medicine at Mount Sinai, Mindich Child Health and Development Institute, New York, NY, USA , New York (United States)
  • 12 Icahn School of Medicine at Mount Sinai, Department of Pediatrics, New York, NY, USA , New York (United States)
Type
Published Article
Journal
Journal of Autism and Developmental Disorders
Publisher
Springer-Verlag
Publication Date
Feb 06, 2017
Volume
47
Issue
5
Pages
1314–1322
Identifiers
DOI: 10.1007/s10803-017-3045-0
Source
Springer Nature
Keywords
License
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Abstract

Autism spectrum disorder (ASD) affects individuals across all racial and ethnic groups, yet rates of diagnosis are disproportionately higher for Black and Hispanic children. Caregivers of children with ASD experience significant stressors, which have been associated with parental strain, inadequate utilization of mental health services and lower quality of life. The family peer advocate (FPA) model has been utilized across service delivery systems to provide family-to-family support, facilitate engagement, and increase access to care. This study used a randomized controlled design to examine the efficacy of FPAs in a racially and ethnically diverse sample. Results demonstrate significantly increased knowledge of ASD and reduced levels of stress for caregivers who received the FPA intervention as compared to treatment as usual.

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