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Ethical implications of newborn screening, life-limiting conditions, and palliative care.

Authors
Type
Published Article
Journal
MCN The American Journal of Maternal/Child Nursing
0361-929X
Publisher
Ovid Technologies (Wolters Kluwer) - Lippincott Williams & Wilkins
Publication Date
Volume
36
Issue
3
Identifiers
DOI: 10.1097/NMC.0b013e318210214c
PMID: 21407122
Source
Medline
License
Unknown

Abstract

While the first few days of an infant's life usually involve incorporation into a joyous family, this period can also be fraught with conditions that affect and potentially threaten survival. This article explores the ethical components of neonatal conditions such as disorders of sex development and metabolic disorders. Ethical issues surrounding futility, requests for unwarranted care, palliative care, and neonatal hospice are also discussed. Helping parents through the grief process and ensuring that they are provided opportunities to participate in important decisions for their neonate are key components of the nursing role. Implications for clinical practice are provided in the form of a case study and practical suggestions for assisting parents through these difficult situations.

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