Affordable Access

deepdyve-link
Publisher Website

Do specialist youth cancer services meet the physical, psychological and social needs of adolescents and young adults? A cross sectional study.

Authors
  • Bradford, Natalie1
  • Walker, Rick2
  • Cashion, Christine3
  • Henney, Rosyln3
  • Yates, Patsy4
  • 1 Queensland University of Technology, School of Nursing, Brisbane, Australia; Institute of Health and Biomedical Innovation at Centre for Children's Health Research, Brisbane, Australia. Electronic address: [email protected] , (Australia)
  • 2 Queensland Children's Hospital, Brisbane, Queensland, Australia; Princess Alexandra Hospital, Brisbane, Queensland, Australia; The University of Queensland, School of Medicine, Queensland, Australia. , (Australia)
  • 3 Queensland Children's Hospital, Brisbane, Queensland, Australia. , (Australia)
  • 4 Queensland University of Technology, School of Nursing, Brisbane, Australia; Institute of Health and Biomedical Innovation at Centre for Children's Health Research, Brisbane, Australia. , (Australia)
Type
Published Article
Journal
European journal of oncology nursing : the official journal of European Oncology Nursing Society
Publication Date
Dec 07, 2019
Volume
44
Pages
101709–101709
Identifiers
DOI: 10.1016/j.ejon.2019.101709
PMID: 31837593
Source
Medline
Keywords
Language
English
License
Unknown

Abstract

To assess unmet information and service needs in adolescent and young adult cancer survivors (15-29 years) who access specialist Youth Cancer Services in Queensland, Australia. Participants were recruited through Youth Cancer Services across Queensland and completed validated Patient Reported Outcome Measures and Patient Reported Experience Measures to assess unmet needs, symptoms and wellbeing and quality of life (QoL) through an online survey. Analysis included Spearman's correlation and t-tests. The sample (N = 42) was representative in terms of gender, cancer type, location of residence and types of treatment. Total QoL varied substantially within the sample, and 56% of total scores were lower than population norms. QoL was inversely correlated with unmet needs (r = -0.64, p=<0.001). There were no explanatory variables identified associated with higher or lower needs or QoL. Young people reported high needs regarding information and support at diagnosis, and for managing side effects and decision making. Most (61-82%) reported these needs were met. At cancer treatment centres, 42% of young people perceived needs were not met regarding talking to other young people, having access to leisure spaces and relevant supportive information. Participants reported low symptom burden and worry about the future but were concerned about their ability to connect with peers and participate in activities. While service and information needs are generally met, young people with cancer who reported higher needs also report substantially lower QoL compared to population norms. Addressing these needs may improve QoL. A continued focus on providing support and services to this population is warranted. Copyright © 2019 Elsevier Ltd. All rights reserved.

Report this publication

Statistics

Seen <100 times