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Disparities in resource utilisation by families of children with cardiac conditions.

Authors
  • Chou, Francisca L1
  • Donovan, Denis J2
  • Weller, Rachel J2
  • Fremed, Michael A2
  • Glickstein, Julie S1, 2
  • Krishnan, Usha S1, 2
  • 1 Columbia University Vagelos College of Physicians and Surgeons, New York, NY, USA.
  • 2 Department of Pediatrics, Division of Pediatric Cardiology, Columbia University Irving Medical Center, New York, NY, USA.
Type
Published Article
Journal
Cardiology in the Young
Publisher
Cambridge University Press
Publication Date
Feb 01, 2024
Volume
34
Issue
2
Pages
325–333
Identifiers
DOI: 10.1017/S1047951123001634
PMID: 37415565
Source
Medline
Keywords
Language
English
License
Unknown

Abstract

There are limited data documenting sources of medical information that families use to learn about paediatric cardiac conditions. Our study aims to characterise these resources and to identify any disparities in resource utilisation. We hypothesise there are significant variations in the resources utilised by families from different educational and socio-economic backgrounds. A survey evaluating what resources families use (websites, healthcare professionals, social media, etc.) to better understand paediatric cardiac conditions was administered to caretakers and paediatric patients at Morgan Stanley Children's Hospital. Patients with a prior diagnosis of CHD, cardiac arrhythmia, and/or heart failure were included. Caretakers' levels of education (fewer than 16 years vs. 16 years or more) and patients' medical insurance types (public vs. private) were compared with regard to the utilisation of resources. Surveys completed by 137 (91%) caretakers and 27 (90%) patients were analysed. Websites were utilised by 72% of caretakers and 56% of patients. Both private insurance and higher education were associated with greater reported utilisation of websites, healthcare professionals, and personal networks (by insurance p = 0.009, p = 0.001, p = 0.006; by education p = 0.022, p < 0.001, p = 0.018). They were also more likely to report use of electronic devices (such as a computer) compared to those with public medical insurance and fewer than 16 years of education (p < 0.001, p < 0.001, respectively). Both levels of education and insurance status are associated with the utilisation of informative resources and digital devices by families seeking to learn more about cardiac conditions in children.

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