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Measuring the social care outcomes of informal carers: an interim technical report for the Identifying the Impact of Social Care (IIASC) study

Personal Social Services Research Unit, London School of Economics and Political Science
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  • Hc Economic History And Conditions
  • Ra Public Aspects Of Medicine
  • Political Science


Meas Measuring the Social Care Outcomes of Informal Carers An Interim Technical Report for the Identifying the Impact of Social Care (IIASC) Study Stacey E. Rand, Juliette Malley and Ann Netten PSSRU Discussion Paper 2833 August 2012 Acknowledgements Thanks are due to Rosalyn Bass and Diane Fox who guided the literature search, to Clara Heath for her help with formatting/editing the manuscript, and to the Carers’ Organisations and Local Authorities who supported the recruitment of carers for the cognitive interviews. We would also like to acknowledge and thank IIASC project colleagues (Jose-Luis Fernandez, Theresia Baumker, Crispin Jenkinson and Julian Forder), the Project Advisory Group and the service users/carers consulted on this project, for their input and advice with this work. Disclaimer This literature review is part of a research study funded by the Department of Health entitled ‘Identifying the Impact of Adult Social Care’ (IIASC), which is being conducted by the PSSRU. This is an independent report commissioned and funded by the Policy Research Programme in the Department of Health. The views expressed are not necessarily those of the Department. 1 1. Introduction Informal care is an integral part of the care provided to people with long term conditions. It is estimated that five million adults in England provide informal care to sick, disabled or elderly adults, of which nearly half provide care for more than twenty hours per week (Department of Health Survey of Carers in Households, 2009/10). In recognition of the contribution of informal care to the overall provision of social care, the support of carers in their caring role has been a key policy concern in recent years (Recognised, valued and supported: Next steps for the Carers Strategy, 2010). In order to achieve these policies, the coalition government has p

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