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Conversations with Children about DNA and Genes using an Original Children’s Book

Authors
  • Newcomb, Patricia
  • Hudlow, Rachel
  • Heilskov, Joan
  • Martinez, C. Diane
  • Hughes, Heather1, 2, 3, 4, 5, 3, 2
  • 1 Nurse Scientist
  • 2 Texas Health Resources
  • 3 Registered Nurse
  • 4 Neonatal Nurse Practitioner and Doctoral Student
  • 5 University of Texas at Arlington
Type
Published Article
Journal
Journal of Pediatric Health Care
Publication Date
Jan 01, 2014
Accepted Date
Feb 23, 2014
Identifiers
DOI: 10.1016/j.pedhc.2014.02.006
Source
Elsevier
Keywords
License
Unknown

Abstract

IntroductionThe purpose of this evaluation was to compare parent and nurse use of an original children’s book about DNA function as a potential assent aid. We also appraised parental knowledge about DNA and use of genetic testing results. MethodWe used mixed qualitative and quantitative methods. Parent-child dyads were recruited at an urban pediatric hospital. Knowledge of genetic concepts was assessed in adults using the Genetic Knowledge Index. Participants read the book, What DNA Does, with a nurse or alone, and participated in interviews with investigators. Content of field notes from interviews were analyzed. ResultsParent and child knowledge of DNA and gene function was generally poor, but improved in most cases, particularly after reading with the nurse. DiscussionThe evaluated book is appropriate as a teaching aid in the child assent process in research or prior to genetic testing, but should be presented by clinicians in most cases.

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