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A continuous juggle of invisible forces: How fatigued dialysis patients manage daily life.

Authors
  • van der Borg, Wieke E1
  • Verdonk, Petra1
  • de Jong-Camerik, Judith Ga1
  • Schipper, Karen1
  • Abma, Tineke A1
  • 1 Amsterdam UMC, location VUmc, The Netherlands. , (Netherlands)
Type
Published Article
Journal
Journal of health psychology
Publication Date
May 01, 2021
Volume
26
Issue
6
Pages
917–934
Identifiers
DOI: 10.1177/1359105319853340
PMID: 31170828
Source
Medline
Keywords
Language
English
License
Unknown

Abstract

Dialysis patients commonly experience severe fatigue. Fatigue is known as an intrusive symptom strongly affecting perceived quality of life. A total of 23 interviews were conducted to explore how dialysis patients respond to fatigue symptoms and its consequences in daily life. A constructivist grounded theory approach guided data analysis and conceptualization of findings. Patients find themselves within a continuous decision loop, considering ones (physical) abilities and questioning ones normative beliefs and values. This inner process interacts with the outside world, and contains various ambiguities. Improved understanding of this demanding process could help to better address fatigue and positively contribute to the quality of life of dialysis patients.

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