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Cognitive functioning in everyday life: The development of a questionnaire on instrumental activities of daily living in multiple sclerosis

Authors
  • van Dam, Maureen
  • Sikkes, Sietske AM
  • Rammeloo, Emma
  • Reinders, Evy
  • Jelgerhuis, Julia R
  • Geurts, Jeroen JG
  • Uitdehaag, Bernhard MJ
  • Hulst, Hanneke E
Type
Published Article
Journal
Multiple Sclerosis Journal - Experimental, Translational and Clinical
Publisher
SAGE Publications
Publication Date
Aug 03, 2021
Volume
7
Issue
3
Identifiers
DOI: 10.1177/20552173211038027
PMID: 34408904
PMCID: PMC8365017
Source
PubMed Central
Keywords
Disciplines
  • Brief Report
License
Unknown

Abstract

Neuropsychological test scores in people with MS (PwMS) do not fully reflect cognitive functioning in daily life. Therefore, we developed a questionnaire based on instrumental activities of daily living (IADL), using the Amsterdam IADL-Q© for Alzheimer’s disease as starting point. Forty-eight items were evaluated on relevance and clarity by (inter)national experts (n = 30), PwMS (n = 61) and proxies (n = 30). Consequently, four items were omitted, two items were merged and seven items were added. Fifty items were included in the IADL questionnaire specific to cognitive functioning in MS (the MS-IADL-Q). Future studies are warranted to assess the psychometric properties of the MS-IADL-Q.

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