Affordable Access

Australian Twin Registry: a nationally funded resource for medical and scientific research, incorporating match and WATCH.

Authors
  • Hopper, John L
  • Treloar, Susan A
  • de Klerk, Nicholas H
  • Morley, Ruth
Type
Published Article
Journal
Twin Research and Human Genetics
Publisher
Cambridge University Press
Publication Date
Dec 01, 2006
Volume
9
Issue
6
Pages
707–711
Identifiers
PMID: 17254395
Source
Medline
License
Unknown

Abstract

The Australian Twin Registry (ATR) has, since the late 1970s, enrolled more than 30,000 pairs of all zygosity types and ages willing to consider participation in approved research studies. Its core functions are the recruitment to, and maintenance of, an up-to-date database containing contact details and baseline information, and the management of fair and equitable access so as to enhance medical and scientific research. The ATR has facilitated more than 430 studies producing 525 peer-reviewed publications using a variety of designs including classic biometrical twin and twin family studies, co-twin control studies, intervention studies, longitudinal studies, and studies of issues relevant specifically to twins. The ATR is supported for 2004 to 2009 by an Australian National Health and Medical Research Council (NHMRC) Enabling Grant, a new form of funding which recognizes the importance of long-term support for shared national resources. New initiatives include: integration with the Western Australian Twin Child Health (WATCH) cohort and the new Western Australian Twin Registry (WATR); foundation of a cohort of mothers and their twin children recruited from the time of diagnosis of the multiple gestation (match); a national Twins Festival run in collaboration with the Australian Multiple Birth Association (AMBA); promotion of the ATR at medical conferences; and fostering an active network of researchers from a range of disciplines and providing financial support for new researchers to attend international twin research workshops. Consistent with its mission statement, the long-term goal of the ATR is to make twin studies a standard component of medical and scientific research.

Report this publication

Statistics

Seen <100 times