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Advice to patients undergoing stem cell transplant: Content analysis of survivor peer support narratives.

Authors
  • Symes, Yael R1
  • Barrington, Clare1
  • Austin, Jane2
  • Wu, Lisa M3
  • Fisher, Edwin B1
  • Rini, Christine1, 4
  • 1 1 The University of North Carolina at Chapel Hill, USA.
  • 2 2 William Paterson University, USA.
  • 3 3 Northwestern University, USA.
  • 4 4 UNC Lineberger Comprehensive Cancer Center, USA.
Type
Published Article
Journal
Journal of health psychology
Publication Date
May 01, 2018
Volume
23
Issue
6
Pages
818–828
Identifiers
DOI: 10.1177/1359105316648672
PMID: 27240681
Source
Medline
Keywords
License
Unknown

Abstract

Hematopoietic stem cell transplant survivors often share advice with patients undergoing this difficult treatment. We content analyzed narratives written by 59 transplant survivors given the opportunity to share advice with patients. Analyses described categories of advice they shared and evaluated their perceptions of the helpfulness of advice they had received. We found nine advice categories and evidence for variation in their perceived helpfulness, especially for advice to "be your own advocate," "have someone you can rely on," and "think positive." Findings suggest the need to investigate how seemingly innocuous advice can be unhelpful and potentially distressing to some patients.

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