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Resilience, Family Care, and People with Intellectual Disabilities

Elsevier Science & Technology
DOI: 10.1016/s0074-7750(03)01004-8


Publisher Summary This chapter discusses the resilience, family care, and people with intellectual disabilities. The importance of assessing personal strengths and skills that form the overarching organization of self at any developmental moment is discussed in the chapter. Resilience would seem to flourish best where it coexists with self-determination and personal control and these are, ipso facto, the prerequisites that structure relationships with others. The relationship between parental adequacy and child outcomes is mediated by many factors, including professional prejudices and stereotypes, attitudes of support workers, and involvement of grandparents and other extended family members. Mothers living alone had service-dependent networks and were at risk of social isolation, mothers living with a partner had family-centered networks with dispersed family ties, whereas mothers living with parents had local, family-dependent support networks. Any appreciation of resilience and caregiving may be contingent upon the frames of reference used in discussing caregiving with families. Innovative forms of short-term breaks, such as a family-based respite, that are able to incorporate apparently mundane ways of coping that the child appreciates at home give the family a sense of reward and enrichment.

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