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A Future Made Together: Shaping autism research in the UK.

Institute of Education, University of London
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Centre for Research in Autism and Education (CRAE) Institute of Education University of London 20 Bedford Way London WC1H 0AL +44(0)20 7331 5140 [email protected] SHAPING AUTISM RESEARCH IN THE UK A FUTURE MADE TOGETHER SHAPING AUTISM RESEARCH IN THE UK A FUTURE MADE TOGETHER Liz Pellicano, Adam Dinsmore and Tony Charman SHAPING AUTISM RESEARCH IN THE UK A FUTURE MADE TOGETHER Contents Foreword Executive Summary Preface Abbreviations Introduction Setting the Scene About the Report A History of Autism: Key Dates Key Areas of Autism Research Autism research activity in the UK: funding Autism research activity in the UK: publications Views from the UK autism community Conclusions Appendices Glossary of Terms Notes 3 4 6 7 8 8 13 14 18 20 24 28 36 i vii viii Foreword As someone who has campaigned over many years to achieve better outcomes for people with autism, I am delighted to be writing this foreword. This report presents a robust and detailed analysis of autism research in the UK and internationally, alongside the views of autistic people and their families about what the research agenda means to them. The research team has analysed several thousand sources of data and collated the views of many hundreds of people. In building the most comprehensive picture yet of the autism research landscape, the report provides a real opportunity for progress and change. We are facing challenging times: there are increasing financial constraints and funding cuts; many organisations are being asked to do more for less; and there is fierce competition for limited resources. It is also a time for the autism community as a whole – autistic people, families, researchers, policy makers and others – to grasp the opportunities presented by the heightened interest in, and awareness of, autism. It is therefore vital that we have available the best

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