Published in BMJ open
Many treatment decisions are preference-sensitive and call for shared decision-making, notably when benefits are limited or uncertain, and harms impact quality of life. We explored if clinical practice guidelines (CPGs) acknowledge preference-sensitive decisions in how they motivate and phrase their recommendations. We performed a qualitative analy...
Published in Journal of evaluation in clinical practice
Published in Psychiatric services (Washington, D.C.)
Background. Most people with multiple sclerosis (MS) want to be involved in medical decision making about disease-modifying therapies (DMTs), but new approaches are needed to overcome barriers to participation. Objectives. We sought to develop a shared decision-making (SDM) tool for MS DMTs, evaluate patient and provider responses to the tool, and ...
Published in Current medical research and opinion
Objectives: The aim of this study was to conduct a discrete choice experiment with patients affected by colorectal cancer to understand their preferences for different attributes of the chemotherapy supply. Our overall goal is to provide evidence on the relative importance of each attribute in order to tailor chemotherapy supply according to patien...
Published in Journal of advanced nursing
目的: 了解护士在基于证据的实践下的护理决策中如何考虑患者的偏好因素,以提供个性化的护理服务。 设计: 定性的基础理论。 方法: 在荷兰,对四家中型医院的27名护士进行了半结构式访谈。此外,在轮班期间还观察了7名护士的情况。采用了Strauss完善的常数比较分析方法和Corbin框架方法。 结果: 确定了护士的三种沟通工具,以辨别和照顾患者的偏好:(a)一个点击工具可以立即建立融洽的关系;(b)监测个别患者的需要;(c)提出感性化问题,以调整患者的个人偏好。参与者强调,给予个性化关注可提高患者的生活质量。 结论优: 秀的护士在基于证据的实践中,有意识地花时间去发现患者的偏好,使用隐性和直觉的沟通工具来协调他们的专业护理。这些工具的使用导致了个性化的护理,似乎是护士的实用智慧的一部分。建议进一...
Published in Cancer medicine
Lung cancer screening (LCS) is effective in reducing lung cancer mortality, but there is limited information available regarding preferences among high-risk individuals concerning LCS. In this study, we use a conjoint valuation analysis (CVA) to better understand which LCS attributes most affect LCS preferences. We implemented a web-based nationall...
Published in Medical decision making : an international journal of the Society for Medical Decision Making
Objective. Public reporting on the quality of provider care has the potential to empower patients to make evidence-based decisions. Yet patients seldom consult resources such as provider report cards in part because they perceive the information as irrelevant. To inform more effective public reporting, we investigated patients' information prioriti...
Published in Medical decision making : an international journal of the Society for Medical Decision Making
Background. Older adults with limited life expectancy frequently receive cancer screening, although on average, harms outweigh benefits. We examined the influence of life expectancy on older adults' cancer screening decisions relative to three other factors. Methods. Adults aged 65+ years (N = 1272) were recruited from a national online survey pane...
New efforts have begun to transform healthcare to focus on patient-centered care. Such efforts will be facilitated by eliciting, operationalizing, and measuring the attainment of patient-identified goals of healthcare. This article describes a practical approach to goal setting and measurement that can be used in efforts to implement patient-center...
