de Los Rios, Patricia Okoli, Chinyere Castellanos, Erika Allan, Brent Young, Benjamin Brough, Garry Muchenje, Marvelous Eremin, Anton Corbelli, Giulio Maria McBritton, Marta
...
Published in
AIDS and behavior
To assess challenges with daily oral antiretroviral therapy (ART), we analyzed data for 2389 participants in the 2019 Positive Perspectives survey of people living with HIV in 25 countries. ART-related challenges reported included difficulty swallowing pills (33.1% [790/2389]); stress from daily dosing routine (33.3% [795/2389]); bad memories from ...
Lokhorst, M M Horbach, S E R Waner, M O, T M van der Vleuten, C J M Spuls, P I van der Horst, C M A M
Published in
JPRAS open
The OVAMA (Outcome Measures for VAscular MAlformations) project determined quality of life (QoL) as a core outcome domain for evaluating treatment effect in vascular malformations. To correctly evaluate treatment effect on QoL, patient-reported outcome measures (PROMs) are needed that are responsive to changes. In children with vascular malformatio...
Yeowell, Gillian Samarji, Richard A Callaghan, Michael J
Published in
Physiotherapy
Osteoarthritis (OA) of the ankle joint is associated with life-long joint pain and disability if not appropriately managed. There is a dearth of research concerning ankle OA and the impact on those living with the condition. To explore the experiences of people living with painful OA ankle and their views about the non-surgical management of this c...
Murer, Carla Sgier, David Mettler, Sofia Kyonhi Guillet, Carole Maul, Julia-Tatjana Djamei, Vahid Navarini, Alexander A Anzengruber, Florian
Published in
Archives of dermatological research
Physicians' and patients' perspectives can vary significantly. For a long time, physicians considered psoriasis a non-pruritic dermatosis until a survey found pruritus to be the most bothersome symptom among psoriasis patients. In our study, we wanted to get an insight into the factors that affect patients and evaluate whether gender differences ex...
Kuzu Kumcu, Müge Bakırarar, Batuhan Yücesan, Canan
Published in
Neurological sciences : official journal of the Italian Neurological Society and of the Italian Society of Clinical Neurophysiology
Behçet's disease (BD) is a multisystemic perivasculitis with recurrent oral aphthous ulcers, genital ulcers, and eye involvement which was first described in 1937. Neurological involvement in BD patients is referred to as neuro-Behçet's disease (NBD). Studies have shown that BD worsens quality of life. However, there is no study that conducts a hea...
Kwon, Albert Lazar, David Devadas, Srinivas Ford, Bryan
Published in
Proceedings on Privacy Enhancing Technologies
Existing anonymity systems sacrifice anonymity for efficient communication or vice-versa. Onion-routing achieves low latency, high bandwidth, and scalable anonymous communication, but is susceptible to traffic analysis attacks. Designs based on DC-Nets, on the other hand, protect the users against traffic analysis attacks, but sacrifice bandwidth. ...
Ester, Manuel Culos-Reed, S. Nicole Abdul-Razzak, Amane Daun, Julia T. Duchek, Delaney Francis, George Bebb, Gwyn Black, Jennifer Arlain, Audra Gillis, Chelsia
...
Published in
BMC Cancer
Background Advanced lung cancer patients face significant physical and psychological burden leading to reduced physical function and quality of life. Separately, physical activity, nutrition, and palliative symptom management interventions have been shown to improve functioning in this population, however no study has combined all three in a multim...
Lester, Ethan G Gates, Melissa V Vranceanu, Ana-Maria
Published in
Annals of behavioral medicine : a publication of the Society of Behavioral Medicine
Neurofibromatosis (NF) is a rare genetic disorder associated with substantial deficits in quality of life (QoL). We have previously shown that in this population the Relaxation Response Resiliency Program for NF (3RP-NF) delivered via live videoconferencing is associated with sustained improvement in QoL from baseline through 6-month follow-up over...
Duff, J. Angell, B.
Published in
Spinal Cord Series and Cases
Introduction Sustaining a spinal cord injury (SCI) has been shown to impose a significant physical and psychological challenge with threat to quality of life (QOL). Duff & Kennedy provide a SCI explanation of appraisals and the two-stage process of an individual’s primary assessment of their experience, and their secondary appraisal of their percei...
Patt, Nadine Kool, Jan Hersche, Ruth Oberste, Max Walzik, David Joisten, Niklas Caminada, Daniel Ferrara, Francesca Gonzenbach, Roman Nigg, Claudio Renato
...
Published in
BMC neurology
Persons with multiple sclerosis (PwMS) often have reduced aerobic capacity and report fatigue as the most disabling symptom impacting their health-related quality of life (HRQoL). A multidisciplinary rehabilitation approach is recommended for successful management of symptoms, although there is little supporting evidence. The aim of this study is t...
