Ueoka, Ken Kabata, Tamon Kajino, Yoshitomo Inoue, Daisuke Ohmori, Takaaki Ueno, Takuro Yoshitani, Junya Yamamuro, Yuki Tsuchiya, Hiroyuki
Published in
BMC Musculoskeletal Disorders
BackgroundA few previous studies have investigated patient satisfaction after total hip arthroplasty (THA) according to the degree of pelvic deformity. This study compared patient-reported outcomes after primary THA for Crowe types III, IV and I dysplasia.MethodsThis retrospective, single-center, single-surgeon case-control study included patients ...
Lutter, Johanna I. Jörres, Rudolf A. Kahnert, Kathrin Schwarzkopf, Larissa Studnicka, Michael Karrasch, Stefan Schulz, Holger Vogelmeier, Claus F. Holle, Rolf Andreas, Stefan
...
Published in
BMC Pulmonary Medicine
BackgroundForced expiratory volume in one second (FEV1) characterizes the pathophysiology of COPD and different trajectories of FEV1 decline have been observed in patients with COPD (e.g. gradual or episodic). There is limited information about the development of patient-reported health-related quality of life (HRQL) over the full range of the natu...
Bharmal, Murtuza Nolte, Sandra Henry-Szatkowski, Mickaël Hennessy, Meliessa Schlichting, Michael
Published in
Health and Quality of Life Outcomes
ObjectivesFor valid and reliable assessment of patients’ Health-Related Quality of Life (HRQoL), it is crucial to use psychometrically robust instruments. In the context of rare diseases such as Merkel cell carcinoma (MCC), validated disease-specific instruments are often not available. The Functional Assessment of Cancer Therapy – Melanoma (FACT-M...
Kaufmann, Marco Salmen, Anke Barin, Laura Puhan, Milo Alan Calabrese, Pasquale Kamm, Christian Philipp Gobbi, Claudio Kuhle, Jens Manjaly, Zina-Mary Ajdacic-Gross, Vladeta
...
Published in
Multiple sclerosis and related disorders
Clinician-assessed Expanded Disease Status Scale (EDSS) is gold standard in clinical investigations but normally unavailable in population-based, patient-centred MS-studies. Our objective was to develop a self-reported gait measure reflecting EDSS-categories. We developed the self-reported disability status scale (SRDSS) with three categories (≤3.5...
Lawson, Andrew Santhakumar, Partiban Naylor, Justine M. Churches, Tim Frost, Steve Harris, Ian A.
Published in
BMC Research Notes
ObjectiveWrist deformity in older people is common following treatment for a wrist fracture, particularly after non-surgical treatment. A cohort of older wrist fracture patients were surveyed by telephone regarding perceived deformity, bother with deformity and patient-reported wrist function. The objectives were to: (1) determine whether older pat...
Close, James Baines, Kathryn Burke, Laurie Hobart, Jeremy
Published in
eNeurologicalSci
• With MS clinical trials increasingly focusing on progressive and advanced MS, we searched for and assessed existing Upper Limb Function (ULF) Patient Reported Outcome (PRO) for MS clinical trials • We established that existing PROs for ULF in MS do not meet regulatory and scientific criteria for content validity. • In fact, we established that th...
Lee, Minji K. Basford, Jeffrey R. Heinemann, Allen W. Cheville, Andrea
Published in
Health and Quality of Life Outcomes
BackgroundThe provision of psychometrically valid patient reported outcomes (PROs) improves patient outcomes and reflects their quality of life. Consequently, ad hoc clinician-generated questionnaires of the past are being replaced by more rigorous instruments. This change, while beneficial, risks the loss/orphaning of decades-long information on d...
Carandang, Kristine Vigen, Cheryl L P Ortiz, Elizabeth Pyatak, Elizabeth A
Published in
Rheumatology international
The objective of this study is to assess the impact of inflammatory arthritis on young adults' activity participation using quantitative and qualitative methods to advance the field's conceptualization of functional status. Young adults diagnosed with juvenile idiopathic arthritis or rheumatoid arthritis completed (1) the Health Assessment Question...
Ayton, Darshini Soh, Sze-Ee Morello, Renata Ahern, Susannah Earnest, Arul Brennan, Angela Lefkovits, Jeffrey Evans, Susan Reid, Christopher Ruseckaite, Rasa
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Published in
BMC Health Services Research
BackgroundComposite measures combine data to provide a comprehensive view of patient outcomes. Despite composite measures being a valuable tool to assess post-intervention outcomes, the patient perspective is often missing. The purpose of this study was to develop a composite measure for an established cardiac outcome registry, by combining clinica...
Kulthanan, Kanokvalai Chularojanamontri, Leena Rujitharanawong, Chuda Weerasubpong, Puncharas Maurer, Marcus Weller, Karsten
Published in
Health and Quality of Life Outcomes
BackgroundThe Angioedema Quality of Life (AE-QoL) is the first patient reported outcome measure developed for the assessment of quality of life (QoL) impairment in patients with recurrent angioedema (RAE). This study aimed to evaluate the clinimetric properties of the AE-QoL in Thai patients and to establish categories of QoL impairment assessed by...
