Introduction: This dissertation project was a randomized controlled trial of a brief psychoeducational intervention targeting three illness perceptions (chronicity, control, coherence) in a sample of uveal melanoma (UM) survivors at UCLA (N = 101). Illness perceptions have been shown to be associated with psychological and disease-related adjustmen...
Published in Child: care, health and development
Children with medical complexity (CMC) account for 1% of children in the United States. These children experience frequent hospital readmissions, high healthcare costs and poor health outcomes. A link between CMC caregiver social support, resilience and hospital readmissions has never been fully investigated. This study examines the feasibility of ...
Liée à la multiplication des actions d’éducation et de promotion de la santé par les activités physiques, la prescription médicale d’activités physiques (AP) permet aux malades chroniques d’intégrer des programmes d’AP adaptées à leur état de santé. Dès 2012, dans un contexte national et local favorable au "sport-santé", la ville de Strasbourg déve...
Published in Paediatrics & child health
Youth with complex health care needs, defined as those requiring specialized health care and services for physical, developmental, and/or mental health conditions, are often cared for by paediatricians and paediatric specialists. In Canada, the age at which provincial/territorial funders mandate the transfer of paediatric care to adult services var...
Published in Public health review
Recruitment, retention, and adherence within health intervention research have been understudied in Indigenous communities, where well-known health disparities exist. The purpose of this paper is to describe planned versus actual recruitment, retention, and adherence strategies and the evaluation of retention and adherence strategies for a communit...
Published in Psychosomatic medicine
Parent chronic illness may increase somatic symptomology risk in children. The current study examines this association in relation to a variety of chronic illnesses and also considers possible related parental and adolescent background factors. Secondary analyses used longitudinal data from the University of North Carolina National Longitudinal Stu...
Although disproportionately high rates of chronic disease and limited access to medical care are consistently reported among Black American women, there have been few empirical studies of the ways in which Black women themselves navigate illness experiences. Individual choices in responding to illness have the potential to support specific physical...
“Dysautonomia” or a dysfunction of the autonomic nervous system, affects approximately 70 million children and adults worldwide. Despite this, a small fraction of studies focus on the experiences of children and teenagers' living with conditions related to dysautonomia. The aim of this study is thus to explore the experiences and perspective of tee...
Published in Patient education and counseling
Upsurge in life expectancy, filial responsibility of caring, and healthcare advances have increased the older adult population in Asia. The last decade has witnessed nuclear families' proliferation in Asia, leaving family caregivers with more accountability and responsibility. This review explores the pattern of caregiver burden among caregivers of...
Published in BMC Geriatrics
The aims of the present study were to estimate the frequency of change in self-rated health (SRH) among community-dwelling older adults, between two measures taken at a 9-year interval; and determine factors associated with a decline and an improvement in SRH, in relation to aspects of physical/emotional health and subjective wellbeing. Data were d...
