Wozniak, Hannah Benzakour, Lamyae Moullec, Grégory Buetti, Niccolò Nguyen, Alice Corbaz, Sandrine Roos, Pauline Vieux, Laure Suard, Jean-Claude Weissbrodt, Rafaël
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Published in
Annals of Intensive Care
BackgroundIntensive care workers are known for their stressful work environment and for a high prevalence of mental health outcomes. The aim of this study was to evaluate the mental health, well-being and changes in lifestyle among intensive care unit (ICU) healthcare workers (HCW) during the first wave of the COVID-19 pandemic and to compare these...
Karlstad, Jannike Moe, Cathrine Fredriksen Wattum, Mari Brinchmann, Berit Støre
Published in
BMC Psychiatry
BackgroundCaring for an individual with an eating disorder involves guilt, distress and many extra burdens and unmet needs. This qualitative study explored the experiences of parents with adult daughters suffering from anorexia nervosa or bulimia nervosa and the strategies they adopted. A subsidiary aim of the study was to explore the relationship ...
Yang, Grace Meijuan Dionne-Odom, J. Nicholas Foo, Yi Han Chung, Ariel Hui Mei Kamal, Nur Haidah Ahmad Tan, Laurence Yu, Chou Chuen Khanh, Le Mai Koh, Audrey Rui Xuan Teo, Irene
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Published in
BMC Palliative Care
BackgroundENABLE (Educate, Nurture, Advise, Before Life Ends) is a nurse coach-led, early palliative care model for patients with advanced cancer and their family caregivers. Content covered includes problem-solving, advance care planning, symptom management and self-care. The aim was to evaluate the cultural acceptability of ENABLE among patients ...
Graffigna, Guendalina Gheduzzi, Eleonora Morelli, Niccolò Barello, Serena Corbo, Massimo Ginex, Valeria Ferrari, Roberta Lascioli, Andrea Feriti, Carolina Masella, Cristina
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Published in
BMC Health Services Research
BackgroundFamily caregivers are key actors in the ageing society. They are mediators between practitioners and patients and usually provide also essential daily services for the elders. However, till now, few services have been deployed to help caregivers in their care tasks as in improving their mental health which can experience sever burden due ...
Alessi, Janine de Oliveira, Giovana B. Erthal, Isadora N. Teixeira, Julia B. Morello, Milena S. Ribeiro, Raquel J. E. de Carvalho, Taíse R. Jaeger, Eduarda H. Schaan, Beatriz D. Telo, Gabriela H.
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Published in
Acta Diabetologica
Objective To investigate the impact of the COVID-19 pandemic on caregivers of youth with type 1 diabetes. Methods We performed a qualitative research based on an open-ended questionnaire that was conducted through an online platform for primary caregivers of children and adolescents with type 1 diabetes. Participants were asked to describe the impa...
González-Moreno, Juan Gaya-Barroso, Aina Losada-López, Inés Rodríguez, Adrián Bosch-Rovira, Teresa Ripoll-Vera, Tomás Usón, Mercedes Figuerola, Antoni Descals, Cristina Montalà, Carles
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Published in
Orphanet Journal of Rare Diseases
BackgroundHereditary transthyretin (TTR) amyloidosis (ATTRv) is a heterogeneous disease with a clinical presentation that varies according to geographical area and TTR mutation. The symptoms of Val50Met-ATTRv are mainly neuropathic and progress to complete disability and death in most untreated patients within 10 to 15 years of diagnosis. The neuro...
Mazanec, Susan R. Blackstone, Eric Daly, Barbara J.
Published in
BMC Nursing
BackgroundFamily caregivers of patients with cancer undergoing radiation therapy experience significant distress and challenges related to high symptom burden and complex care demands. This is particularly true for caregivers of patients with head and neck, esophageal, anal, rectal, and lung cancers, who are often receiving combined-modality treatm...
Bellone, Katherine M. Elliott, Stephen C. Hynan, Linda S. Warren, Beth Jarrett, Robin B.
Published in
Journal of Autism and Developmental Disorders
We conducted an open-trial proof of concept study to determine the safety, acceptability, and feasibility of Mindful Self-Care for Caregivers (MSCC) for parents of children with Autism Spectrum Disorders (ASD) (N = 13). The intervention was offered as a co-located care model in a pediatric specialty center where the participants’ children received ...
Wang, Tao Molassiotis, Alex Chung, Betty Pui Man Zheng, Si-Lin Huang, Hou-Qiang Tan, Jing-Yu (Benjamin)
Published in
BMC Palliative Care
BackgroundStudies in the West have demonstrated that appropriate informational support is a vital component of cancer care, with positive effects on both patients and their informal caregivers. Since little is known about the information needs of advanced cancer patients and informal caregivers in China, where ‘silence as virtue’ is much more value...
Guler, Mehmet Akif Erhan, Belgin Yilmaz Yalcinkaya, Ebru
Published in
Acta neurologica Belgica
The effects of caregiver burden during the inpatient rehabilitation period have not yet been investigated. The purpose of this study was to evaluate the burden on stroke survivors' caregivers during the inpatient rehabilitation period, and to compare the associations of robot-assisted gait training and conventional therapy with caregiver burden. Ou...
